By the way, that wasn’t some sort of dig. It’s a question that companies should sincerely ask themselves.
I’ve found most companies think of autistics as simply individuals. We’re also community. We’re culture. To find success, companies must connect with the autistic community.
And to connect w/ the autistic community, they must connect with autistic communities. We’re not a monolith. We’re not all white men. There is vibrant black autistic culture, queer autistic culture, Deaf/HH autistic culture, groups of autistic scientists, autistic academics, etc.
And to other autistics, I’d issue this challenge: Whenever we find ourselves individually engaging with companies or groups who want to understand us, point them to autistic people who look, speak, and experience the world in ways very different than ourselves.
This is the most joyous part of advocacy when you get down to it. As an individual, it’s easy to be dismissed or tokenized. However, insisting and saying “you really need to listen to other voices besides me” helps to circumvent that and begins to build power.
My hope for 2020 is that autistic people will further grow our sense of community and culture, that we will support and ally and accomplice with the specific autistic community and culture of autistics different than ourselves, and that we help non-autistic people do so as well.
So, I’m not knocking #AutismAtWork companies here. I’m saying “there’s so much more you should know!”
Engage with autistic community and culture. Engage with ALL autistic communities and culture. Doing so will deliver the results you seek - and more.
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Someone wrote that Judge Amy Coney Barrett would bring “heart” to ‘special needs’ if confirmed to the #SupremeCourt. After showing my respect for the person who wrote that, and understanding of where they were coming from, this was my response:
“Disabled people don’t need lawmakers or jurors to bring “heart” to ‘special needs’. That’s what has led to patronizing policy which has f%¥ked over the exercise of our equality and marginalized our full participation in society over-and-over-and-over again...
It’s one of the greatest things we organize and fight against and we will continue to fight against it until the law and policy makers recognize that we are just like everyone else...
The whole #BobWoodward thing reminds me that our better politicians understand the press will try to ‘get’ them, and that’s a good, healthy thing for our democracy. They respect and welcome that.
—> It’s a BS check.
Bad politicians think the press is there to serve them.
*I should say it’s not as much that the press tries to “get” politicians, but that they don’t regard a politician’s messaging priorities when they are reporting stories. That’s an amazing thing, and when I was a press officer it drove me up the wall.
I hated it, but I loved it.
And the #BobWoodward tapes remind me of #LouChibarro of the @WashBlade. When I was a press officer, he was so masterful in asking a question, letting you answer, then NOT SAYING ANYTHING.
The subject felt compelled to fill the silence with more information.
👨🍳💋
So, while I very much *feel* #SpoonTheory in my being, it all falls apart when trying to use it as a metaphor with others (or as an accommodation strategy for myself). I constantly miscount and lose them.
When speaking, or in meetings, I’m often asked by folks to explain spoon theory. I usually just turn to someone I trust and ask “Could you explain it?”
For myself, I’ve learned to just make myself stop, slow down, or turn down requests when needed — and to be ok with that.
I mean, I’m a huge supporter of spoon theory as a metaphor to explain things to others and as an accomodation peoole can use themselves. It just all gets tangled and anxiety-inducing for me.
I love to laugh at that, though. You kind of gotta.
I often think on how research, medicine, and psychiatry approach and ‘treat’ autistic people today in the exact same manner they approached and ‘treated’ homosexuality until 1972.
Then, thanks to #LGBTQ advocates, homosexuality was suddenly ‘cured’ by @APAPsychiatric overnight.
Where are the endless research papers about the genetics and epigenetics of gay people?
Where are the warnings of “risk factors” for lesbians?
Where’s the pleading for “early intervention” for bisexuals?
What about environmental factors?!?!
We probably know less about gay people now than autistic people. But, we know enough not to funnel everything about LGBTQ people through a pathological frame.
All the questions we ask about autism are still there (and largely unanswered) for LGBTQ people.