People keep sharing this piece by @autistichoya and LOVING it. This includes parents I know of autistic kids (of all support type needs) who’ve never encountered the work of Lydia X. Z. Brown (the author) but who’ve now shared it with all their networks.
I like to joke that @autistichoya “scares me”. I mean that a the highest compliment in my own weird way. Like Thunberg, she’s not afraid to speak truth. We need that, I need that, to keep us sharp, focused, and effective.
The fact that parents I know in Ohio, Iowa, Montana, New Mexico & other places are resonating with this tells you how much the message of @autistichoya here is connecting with them. These are parents of kids with low support needs, high support needs, non-speaking, speaking, etc.
Some of these parents neurodiversity champions. Some have only a passing understanding of #SelfAdvocacy or neurodiversity. Yet, they are all lighting up around this piece (edited by @EricMGarcia, btw). That has just made my day.
And now for the most autistic part of this tweet: I STILL haven’t read it as my weekend has been PACKED (typing this while running an errand). However, their embrace of the piece & validation of it tells me so much.
Finally reading it tonight will be a holiday gift to myself. 😃
*Apologies for the typos as I walk and if the “scares me” compliment about @autistichoya doesn’t come off clearly. I don’t know the right word. — It’s that thing where you respect someone enough to value their criticism, so you consciously do better because of it.
It’s like when you have a parent or mentor who says “I’m not mad, I’m just disappointed” and that prompts you to hustle to make things right and do better. That’s what Lydia X. Z. Brown’s writing and advocacy does for me (similar to #JamesBaldwin that way).
**And I meant to say “they” when referring to @autistichoya in the above tweet. My apologizes to them and my gratitude as well.
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Someone wrote that Judge Amy Coney Barrett would bring “heart” to ‘special needs’ if confirmed to the #SupremeCourt. After showing my respect for the person who wrote that, and understanding of where they were coming from, this was my response:
“Disabled people don’t need lawmakers or jurors to bring “heart” to ‘special needs’. That’s what has led to patronizing policy which has f%¥ked over the exercise of our equality and marginalized our full participation in society over-and-over-and-over again...
It’s one of the greatest things we organize and fight against and we will continue to fight against it until the law and policy makers recognize that we are just like everyone else...
The whole #BobWoodward thing reminds me that our better politicians understand the press will try to ‘get’ them, and that’s a good, healthy thing for our democracy. They respect and welcome that.
—> It’s a BS check.
Bad politicians think the press is there to serve them.
*I should say it’s not as much that the press tries to “get” politicians, but that they don’t regard a politician’s messaging priorities when they are reporting stories. That’s an amazing thing, and when I was a press officer it drove me up the wall.
I hated it, but I loved it.
And the #BobWoodward tapes remind me of #LouChibarro of the @WashBlade. When I was a press officer, he was so masterful in asking a question, letting you answer, then NOT SAYING ANYTHING.
The subject felt compelled to fill the silence with more information.
👨🍳💋
So, while I very much *feel* #SpoonTheory in my being, it all falls apart when trying to use it as a metaphor with others (or as an accommodation strategy for myself). I constantly miscount and lose them.
When speaking, or in meetings, I’m often asked by folks to explain spoon theory. I usually just turn to someone I trust and ask “Could you explain it?”
For myself, I’ve learned to just make myself stop, slow down, or turn down requests when needed — and to be ok with that.
I mean, I’m a huge supporter of spoon theory as a metaphor to explain things to others and as an accomodation peoole can use themselves. It just all gets tangled and anxiety-inducing for me.
I love to laugh at that, though. You kind of gotta.
I often think on how research, medicine, and psychiatry approach and ‘treat’ autistic people today in the exact same manner they approached and ‘treated’ homosexuality until 1972.
Then, thanks to #LGBTQ advocates, homosexuality was suddenly ‘cured’ by @APAPsychiatric overnight.
Where are the endless research papers about the genetics and epigenetics of gay people?
Where are the warnings of “risk factors” for lesbians?
Where’s the pleading for “early intervention” for bisexuals?
What about environmental factors?!?!
We probably know less about gay people now than autistic people. But, we know enough not to funnel everything about LGBTQ people through a pathological frame.
All the questions we ask about autism are still there (and largely unanswered) for LGBTQ people.