I fell asleep watching a British series on the history of how humans came to understand the universe, computers, and information technology.
Nearly every key person featured *mysteriously* had hyper focus, obsessive interests, and difficulty socially communicating w/ peers.
🤷♂️
For those asking me the series, it was various documentaries by physicist Jim Al-Khalili. It was on YouTube, so after watching one, the algorithm prompted me to watch more by him (so, it turns out not one documentary series, but multiple. However, they all had the same “feel”).
They were all very well-done science presenting. ‘Everything and Nothing’ was one series on cosmology. I remember that. The others I saw were other series mixed in.
I watched one, fell asleep, woke up to another, and repeated.
I really enjoyed them when I was awake!
I also don’t mean to convey that autistic people are super humans. We’re normal. But, it seems we’ve been overrepresented at key points of history when our understanding of science advances. That’s worth examining.
We’re not better than neurotypicals (and vice versa). So, why?
Author @stevesilberman set up the foundation of exploring that question in #Neurotribes. I’ve always hoped autism funding would focus on answering that question (instead of just why we exist).
There’s lessons there in accomodations, communication, socialization, etc.
And not every autistic person is going to be a scientist (not every neurotypical person either). However, untangling that thread of why we seem to be overrepresented in certain fields may help uncover larger patterns that help us understand autistic people more broadly.
Many autistic people think about this too. I like to say “autistic people have already figured out autism - all of it.” It’s just that the totality of that knowledge resides in bits/pieces of all of us in a vast archipelago of people as we each understand ourselves a bit better.
Anyway, my thoughts are waxing. We can study all the genetics and epigenetics of autism, but we still won’t understand autism until we examine the context of how those genetics and epigenetics have played out throughout human history.
We’re not better or less, but we’re here.
*Sorta like LGBT people (a community I’m also proudly a member of).
• • •
Missing some Tweet in this thread? You can try to
force a refresh
Someone wrote that Judge Amy Coney Barrett would bring “heart” to ‘special needs’ if confirmed to the #SupremeCourt. After showing my respect for the person who wrote that, and understanding of where they were coming from, this was my response:
“Disabled people don’t need lawmakers or jurors to bring “heart” to ‘special needs’. That’s what has led to patronizing policy which has f%¥ked over the exercise of our equality and marginalized our full participation in society over-and-over-and-over again...
It’s one of the greatest things we organize and fight against and we will continue to fight against it until the law and policy makers recognize that we are just like everyone else...
The whole #BobWoodward thing reminds me that our better politicians understand the press will try to ‘get’ them, and that’s a good, healthy thing for our democracy. They respect and welcome that.
—> It’s a BS check.
Bad politicians think the press is there to serve them.
*I should say it’s not as much that the press tries to “get” politicians, but that they don’t regard a politician’s messaging priorities when they are reporting stories. That’s an amazing thing, and when I was a press officer it drove me up the wall.
I hated it, but I loved it.
And the #BobWoodward tapes remind me of #LouChibarro of the @WashBlade. When I was a press officer, he was so masterful in asking a question, letting you answer, then NOT SAYING ANYTHING.
The subject felt compelled to fill the silence with more information.
👨🍳💋
So, while I very much *feel* #SpoonTheory in my being, it all falls apart when trying to use it as a metaphor with others (or as an accommodation strategy for myself). I constantly miscount and lose them.
When speaking, or in meetings, I’m often asked by folks to explain spoon theory. I usually just turn to someone I trust and ask “Could you explain it?”
For myself, I’ve learned to just make myself stop, slow down, or turn down requests when needed — and to be ok with that.
I mean, I’m a huge supporter of spoon theory as a metaphor to explain things to others and as an accomodation peoole can use themselves. It just all gets tangled and anxiety-inducing for me.
I love to laugh at that, though. You kind of gotta.
I often think on how research, medicine, and psychiatry approach and ‘treat’ autistic people today in the exact same manner they approached and ‘treated’ homosexuality until 1972.
Then, thanks to #LGBTQ advocates, homosexuality was suddenly ‘cured’ by @APAPsychiatric overnight.
Where are the endless research papers about the genetics and epigenetics of gay people?
Where are the warnings of “risk factors” for lesbians?
Where’s the pleading for “early intervention” for bisexuals?
What about environmental factors?!?!
We probably know less about gay people now than autistic people. But, we know enough not to funnel everything about LGBTQ people through a pathological frame.
All the questions we ask about autism are still there (and largely unanswered) for LGBTQ people.