This. This is the sort of thing that’s meant when we say “to be pro-neurodiversity is to be anti-racist.”
Just as we demand autistic representation in services and groups about us, we must actively center and empower #AllAutistics in our own organizing efforts and structures.
IT IS A PRIVILEGE AND A BLESSING to be a relatively new movement. We have the opportunity to get things right from the start.
This is a matter of social justice and of ethics. It’s also a matter of effectiveness. But, those are just explanations. We shouldn’t need an excuse.
When I see an autism organization and they don’t have any autistic people on their Board or leadership staff (90%+), I ask “Why?” They almost always reply with a version of “We’d love to, but where are they?”
I respond “That’s your responsibility to figure out.”
Autism groups (and many larger disability groups as well) don’t exercise active ableism to keep autistic/disabled people from their leadership structure. Instead, passive ableism and ableist constructs keep us out. These groups are largely unaware...
These groups often try to quickly find a dazzling autistic person or two to serve as a token (even though they don’t see it that way). That does nothing of practical impact. Tokenism never works. It’s destructive in its own way.
So, what’s the solution? A group fixing itself.
Some questions we must constantly ask as we build our own organizing structures:
Why are there not BIPOC here?
Why are there not women/nonbinary people here?
Why are there not queer people here?
Why are there not non-speaking people here?
Why are there not I/DD people here?
Of course, we should ask ourselves those questions BEFORE we begin to organize.
We must also also those questions even if we think we’ve done a good job with them already.
And there’s lots more questions to ask.
We must continue to refine our efforts in this.
If we are organizing an effort of autistic people and there are no BIPOC there, if there’s lack of gender diversity, if non-speaking people are absent, if those with intellectual disabilities are absent, if those with high support needs aren’t there, we must ask ourselves ‘WHY?’
It’s not as if the missing people have chosen not to organize or meet with us out of personal taste. It’s not Coke vs. Pepsi. It’s because there are barriers there which have been ARTIFICIALLY erected which prevent them from attending. That comes in lots of forms.
It is joyous work to find and dismantle those barriers. They aren’t unique to autistic organizing. They’re everywhere in life.
The better we are in recognizing and breaking them down here, the more swiftly we’ll search them out and tear them down in other parts of life.
And here’s the thing: This is how we win. This is how we defeated the outdated status quo around autism under which we and our families suffer. In 23 years of organizing, this is one thing for certain I know.
But, we shouldn’t need that excuse to do it.
Y’all may read this and think I’m yelling. But, this is a happy thread. This is a rallying call. I wish you could hear the excitement in my thumbs as I type this out.
What an opportunity we have.
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Someone wrote that Judge Amy Coney Barrett would bring “heart” to ‘special needs’ if confirmed to the #SupremeCourt. After showing my respect for the person who wrote that, and understanding of where they were coming from, this was my response:
“Disabled people don’t need lawmakers or jurors to bring “heart” to ‘special needs’. That’s what has led to patronizing policy which has f%¥ked over the exercise of our equality and marginalized our full participation in society over-and-over-and-over again...
It’s one of the greatest things we organize and fight against and we will continue to fight against it until the law and policy makers recognize that we are just like everyone else...
The whole #BobWoodward thing reminds me that our better politicians understand the press will try to ‘get’ them, and that’s a good, healthy thing for our democracy. They respect and welcome that.
—> It’s a BS check.
Bad politicians think the press is there to serve them.
*I should say it’s not as much that the press tries to “get” politicians, but that they don’t regard a politician’s messaging priorities when they are reporting stories. That’s an amazing thing, and when I was a press officer it drove me up the wall.
I hated it, but I loved it.
And the #BobWoodward tapes remind me of #LouChibarro of the @WashBlade. When I was a press officer, he was so masterful in asking a question, letting you answer, then NOT SAYING ANYTHING.
The subject felt compelled to fill the silence with more information.
👨🍳💋
So, while I very much *feel* #SpoonTheory in my being, it all falls apart when trying to use it as a metaphor with others (or as an accommodation strategy for myself). I constantly miscount and lose them.
When speaking, or in meetings, I’m often asked by folks to explain spoon theory. I usually just turn to someone I trust and ask “Could you explain it?”
For myself, I’ve learned to just make myself stop, slow down, or turn down requests when needed — and to be ok with that.
I mean, I’m a huge supporter of spoon theory as a metaphor to explain things to others and as an accomodation peoole can use themselves. It just all gets tangled and anxiety-inducing for me.
I love to laugh at that, though. You kind of gotta.
I often think on how research, medicine, and psychiatry approach and ‘treat’ autistic people today in the exact same manner they approached and ‘treated’ homosexuality until 1972.
Then, thanks to #LGBTQ advocates, homosexuality was suddenly ‘cured’ by @APAPsychiatric overnight.
Where are the endless research papers about the genetics and epigenetics of gay people?
Where are the warnings of “risk factors” for lesbians?
Where’s the pleading for “early intervention” for bisexuals?
What about environmental factors?!?!
We probably know less about gay people now than autistic people. But, we know enough not to funnel everything about LGBTQ people through a pathological frame.
All the questions we ask about autism are still there (and largely unanswered) for LGBTQ people.