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Jennifer Iscol Profile picture
@CalCeliac
Jun 4, 2020 • 3 tweets • 3 min read • Read on X
CALL TO ACTION: @US_FDA is temporarily relaxing food labeling to help minimize the impact of COVID-19 disruptions to the supply chain. It weakens #glutenfree labeling & may create a #celiac health risk.
Read our group letter & submit your comment to FDA.
celiaccommunity.org/2020/letter-to… Image
Tremendous thanks to @GFWatchdog for leading the collaborative letter writing, two attorneys who volunteered their time, & @NationalCeliac @TweetSSCD, @GlutenDotOrg @BeyondCeliac & others. Please add your own voice by submitting a comment to FDA. Link and content in our blog.
Special shoutout to the two attorneys, Adam Rapp of Glynn & Finley in Walnut Creek, CA, and Kaki Schmidt, in Washington, D.C., who helped draft the letter and work with @GFWatchdog pro bono. It makes a huge difference when community members with specific skills jump in.

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More from @CalCeliac

Jennifer Iscol Profile picture
Sep 23, 2020
Celiac Disease and Covid-19: Thread with selected highlights from the webinar today co-hosted by @NationalCeliac and the @harvardmed Celiac Research Program, moderated by Dr. Alan Leichtner @BostonChildrens, featuring Dr. Alessio Fasano @CeliacResearch and Dr. Jonathan Li @DrJLi
Physician-scientist Dr. Jonathan Li @BrighamWomens, director of the Harvard University Virology Specialty Laboratory, opened with an excellent overview of Covid-19 that I highly recommend watching, but for length I will focus on the celiac-specific content in this thread
Dr. Alessio Fasano said that because Covid-19 is brand new, "we are building the airplane while we are flying" and it's too early to answer many of the questions that come up about how #celiac disease as an autoimmune condition interacts with #Covid19
Read 14 tweets
Jennifer Iscol Profile picture
May 5, 2020
Camp Celiac swag is our #GivingTuesdayNow fundraiser! We have cool gear for everyone. Support kids with #celiacdisease and other #gluten-related disorders during the pandemic by helping us fund virtual Camp Celiac! Here's one of two logo styles customink.com/fundraising/ca… Image
Here's our second logo style for our Camp Celiac swag #GivingTuesdayNow fundraiser! Create your own #glutenfree home celiac camp and attend in style customink.com/fundraising/ca… Image
We can't host in-person Camp Celiac this year but our director & counselors are planning Virtual Camp Celiac 2020 on our social media platforms & Zoom. We have substantial costs in providing virtual camp & other free community services during the pandemic. Thx for your support!
Read 4 tweets
Jennifer Iscol Profile picture
Feb 5, 2020
Proposed labeling by @GeneralMills of using "GF" for a product that is not also labeled "gluten-free" violates the spirit if not the letter of the @US_FDA #glutenfree labeling rule & is an ill-considered affront to #celiac advocacy & #glutenfree consumers generalmillscf.com/products/categ… Image
@GeneralMills @US_FDA Thanks to @GFWatchdog for alerting the community to this issue and taking the lead. @GeneralMills needs to provide a statement. We would consider a boycott if this cannot be resolved through other means. It's an unsafe approach to labeling #publichealth #celiac
@GeneralMills @US_FDA @GFWatchdog While @GeneralMills is planning to skirt and possibly violate the @US_FDA #glutenfree labeling rule with "gluten friendly" products using a "GF" symbol, note that the unwelcome term has only been used in restaurants, not on packaged products made in controlled environments
Read 4 tweets
Jennifer Iscol Profile picture
Nov 18, 2019
Our foundation needs your input. I am writing about Microdrop's "imaware" home #celiac test and #rheumatoid #arthritis tests. Reply, DM or send an email to me at jiscol@celiaccommunity with your experience. Your name will not be published without your permission. RTs helpful. Image
We would like to hear about your Microdrop @imaware_health #celiac or #rheumatoid #arthritis test experience, positive or negative, whether adults or children were tested, whether you acted on the results, whether you looked into it and haven't purchased one, etc.
If you used an @imaware_health home #celiac or #rheumatoid #arthritis test in LATE APRIL, MAY or JUNE, we have an extra interest in hearing from you.

If you are an influencer paid to promote the company or received a free test, please disclose.

Qs are welcome - thanks!
Read 4 tweets
Jennifer Iscol Profile picture
Jul 1, 2019
Great teamwork by media, physician, patient, advocate, lab, to demonstrate for public understanding that restaurant #glutenfree pizza may not be safe for those with #celiac. Need restaurant education & @US_FDA action @GMA @BenjaminLebwohl @GFWatchdog @k_liebowitz @Biadiagnostics
Let's recall what @US_FDA has stated about food labeled #glutenfree in restaurants:
"FDA recognizes that compliance with the gluten-free regulation in processed foods and food served in restaurants is important for the health of people with celiac disease." 1/8
"FDA’s regulation established a federal definition of the term “gluten-free” for food manufacturers that voluntarily label FDA-regulated foods as “gluten-free.” The definition was intended to provide a reliable way for people with celiac disease to avoid gluten, and..." 2/8
Read 9 tweets
Jennifer Iscol Profile picture
Mar 26, 2019
It's very good to see the first validation study @imaware_health. Congratulations to your team! This is important progress. I look forward to the followup studies described in the validation. In the meantime, I have some questions, which are numbered Q1-3 in this thread. 1/9
I am studying @MicrodropHealth / @imaware_health from multiple angles. I don't see investors or medical/scientific employees (rather than paid advisors) on the website. So I have a few Qs that arose as I started my review, and that I hope you are in a position to answer. 2/9
According to a PR release by the manufacturer of your kits, SQI Diagnostics @Best_Multiplex, the goal within a year is to begin testing 50k people annually for #celiac disease and 25k more for #rheumatoidarthritis finance.yahoo.com/news/sqi-diagn… 3/9
Read 9 tweets

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