Thread by @8Homeslice8

#LongCovid #covid1in20 the #mecfs community needs your help! For decades, ME patients have been left permanently disabled (wheelchairs, bedridden) by grades exercise therapy. Fir decades we gave reported these harms and asked for the treatment to be removed 1/

from the NICE guidelines. In 2017 NICE finally agreed to review the current guidelines which were 10 years old at the time. The new guidelines won't be published until 2021. We have been asking NICE since 2017 to add a warning to the front page of the ME/CFS treatment 2/

guidelines, to warn in the meantime that GET can cause harm to ME/CFS patients. We have sent multiple stories & evidence from thousands of patients who have been made much worse by GET, and asked multiple times for NICE to issue a warning to prevent further harms. 3/

This week, NICE finally issued a warning on the front page of the ME/CFS treatment guidelines...
... saying that GET shouldn't be used in post-COVID fatigue, but that it is still OK to use on ME/CFS patients even though they are reviewing this and this may change in 2021.

4/

This is a HUGE slap in the face for ME/CFS patients who have been asking for such a warning for outselves for many years!!

Most cases of ME were also triggered by viruses. ME patients deserve equal protection from harms, especially since we have been suffering and fighting 5/

this for decades.

Please, if you have the energy, could you write to NICE in solidarity, requesting that ME patients also be protected from harm with the issue of an equivalent warning for us?

The e-mail address to write to is [e-mail]

Thank you so much.

END

*graded exercise therapy. Sorry for the typo!