I get inspired by real world problems that I feel are solvable with data, because then it becomes within my scope to tackle. If I look at #glioblastoma I see room for #blockchain to provide clarity on #patientconsent for uses to enable monetization, ideally to help offset costs.
To unpack these things further, I mean leveraging smart contracts for dynamic consent or 'prosent' as presented here: jme.bmj.com/content/early/…
This would allow for the patient to opt into selling their data to researches, insurance or pharmaceutical companies
This would allow for the patient to opt into selling their data to researches, insurance or pharmaceutical companies
Another resource I've found is this one on how the Malta Biobank is using dynamic consent via hyperledger fabric...
"a more robust model could lay the foundation for a closer collaboration between biobank managers, researchers, and research partners" doi.org/10.1038/s41431…
"a more robust model could lay the foundation for a closer collaboration between biobank managers, researchers, and research partners" doi.org/10.1038/s41431…
Another area of opportunity is for #raredisease or #orphandisease registries. Aggregating key metadata will be crucial to making sure populations get the scientific horsepower needed to accelerate our understanding. Sharing data and learnings rather than innovating in silos.
To participate where I can in this shift towards #interoperability for #healthdata I have created MRN as a tokenizable asset that can house key medical records via an IPFS hash. There is also messaging between token holders (ex: think broadcasting for clinical trials). DM me!
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