The really hard thing about being disabled and poor is that you feel like a huge asshole when lots of people give you great suggestions and you have to turn 95% of them down bcuz you don't have the money or space and probably can't handle the cleanup or setup
Society goes out of its way to make you feel like a whiny, ungrateful wretch who isn't trying or just wants to complain bcuz you've either already tried something or have reasons you can't try something or don't think it'll work or be worth the effort or money
It doesn't help that I've always been on the receiving end of verbal and emotional abuse bcuz "it must not be that bad" if I'm not doing what other ppl think I should be doing or trying, esp in regards to my mental health or disability.
But the underpinning of this is the idea that mentally ill, chronically ill, disabled, and poor ppl, esp if they're non-white and non men (or trans men), are inherently untrustworthy, lazy, whiny and unable to know their bodies and minds.
It's so often "do you actually want help" or "why did you ask for advice if you're gonna turn everything down/not even try" but like, so much advice starts by assuming how much money and space I have, how much energy and pain I have, how many public and personal resources
Nobody did or said anything of the sort but I always feel self conscious bcuz ppl have said these things in the past and have disparaged me for it and accused me of faking and laziness in the past, esp bcuz I have games and tech and such but like
You have no idea the kinds of things my husband does to get nice things for us, and we always give stuff up to get those things and they aren't gotten often. All our stuff is several years old for example, or gifts. That one time purchase with a year end bonus doesn't solve
Daily problems like food concerns, or getting new clothes for a growing kid. We haven't had new clothes in years and he's needed new shoes for years cuz he's replacing mine instead. He's only got nice clothes bcuz they're for *work* and he got a lot as gifts.
You can tell what's for work and what were gifts in his closet, the difference is obvious. Most of our casual stuff has holes and is worn out. It's cheaper to buy a game once a year than replace clothes and shoes. And I'm fat so I'm not finding much at thrift stores.
And there's not many thrift stores near me. Other than goodwill which we know is trash and exploits disabled ppl. But ppl see games as luxury items and disabled and poor ppl aren't allowed to have nice things or enjoy themselves or entertain themselves
But they're also not allowed to turn down any and all advice without being accused of whining, ungratefulness, laziness, or even lying. So I'm having a rough time being that poor, disabled person, esp since I'm Black. I'm tired today

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More from @SingsongRaptor

13 Sep
I don't know why I'm having so many thoughts about the term "noncompliant” today. Part of my issue with it is that it reveals how much HCPs start an interaction by disbelieving marginalized patients. The more axes of marginalization the more disbelief.
An example: every neurologist and ER doc I've met asks me if I have diabetes if I mention my nerve pain and paresthesia. They assume the cause is that bcuz I'm fat and Black and most HCPs hold the inaccurate belief that Type2 is caused by fatness and bad diet.
I'm not diabetic, I'm not prediabetic, nobody in my family has diabetes, they ask bcuz they make assumptions about me and my diet based on bias. They don't believe me when I tell them what my diet is like. They over test me for diabetes.
Read 18 tweets
13 Sep
I hate the term "noncompliant" as a patient. It strongly implies a willful refusal to heed the advice of HCPs and it's unevenly applied against patients and is frequently weaponized by HCPs. Drs esp refuse to acknowledge any barriers pts may have to compliance
The threat of being labelled noncompliant erodes the trust of patients and is often used to coerce marginalized pts into treatments they can't sustain or that they know will harm them at worst and do nothing at best. It prevents pts from seeking help for problems as well
I've been coerced multiple times into doing tx that I know I can't do or that I know will be harmful or unhelpful. Or I just flat out lie, bcuz either I've tried it before or I know my barriers to access will go ignored and I'll be labeled noncompliant for shit I can't control
Read 11 tweets
12 Jul
#BlackLivesMatter be like: stop killing us! Let us live free and in peace! Give us equity! *Sees another marginalized group* hey, hey, hey, them too, give alla dat over there too. Disabled lives? Hell yeah we care, we got them too!
#DisabledLivesMatter :
We don't care about or support Black disabled ppl, their needs or movements, we pretend they don't exist, harass them for speaking up, we know nothing about Black activism past or present, but we want them to talk about our problems and work for us
#DisabledLivesMatter shows that nonBlack disabled ppl don't care about Black ppl. You're angry that we're hypervisible, but the system is trying to destroy and silence us with shallow, performative bullshit. You demand that we talk about you and that we've had enough spotlight.
Read 12 tweets
12 Jul
Just racist and ignorant with ya whole chest huh? Let's break this
#DisabledLivesMatter claptrap down cuz this is some trifling ass bullshit. Screen cap of tweet by @/Ac...
First off, Black folks are disabled too. You can't delete the racism we face or how it affects the ableism we face. Disabled ppl are something like 50-55% of ppl murdered or assaulted by cops. BLM wants an end to *all* police brutality and advocates for such.
Black ppl are overwhelmingly more likely to be disabled and/or chronically ill due to the pervasive, systemic nature of RACISM. Our poverty is worse, the access and quality of our healthcare, food and environment are worse, we're denied education and disability assistance more.
Read 17 tweets
5 Jul
Telling Black people, especially Black women, that they're "strong", a "superhero" or are "your hero" for enduring and surviving the realities of oppression, for educating you on their lived experience and/or sharing their trauma with you, is a microaggression. Stop it.
Black people are not superheroes just for existing. We don't exactly have a choice in the matter of enduring centuries of genocide and oppression, compounded by any other marginalization we are subjected to, like being queer, trans, disabled or a woman.
White supremacy declares us superhuman, unable to feel pain, able to endure all manner of harsh treatment, cruelty and labor, able to stand strong against tidal waves and hurricanes of evil. It declares us impervious, a support beam, a monster
Read 11 tweets
2 Jun
#DisabledBlackTalk honest to gods I swear white ppl shouldn't share graphic photos/vids of violence against Black ppl. Y'all lack the range, the nuance, the understanding of when/why/how to use them. Y'all still lack the respect for our bodies, our lives, our humanity
Ppl that do trigger warnings for everything else be glossing over Black trauma and brutality and literally don't even realize it, don't even see it sometimes. #DisabledBlackTalk
Y'all don't do this to white victims
Y'all don't do this to animals.
The stripping of our dignity and humanity, of respect, reducing us to talking points, to exhibits, to signs, to *things*, to props, to entertainment, to scary events is deeply ingrained
#DisabledBlackTalk
Read 47 tweets

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