I often think on how research, medicine, and psychiatry approach and ‘treat’ autistic people today in the exact same manner they approached and ‘treated’ homosexuality until 1972.
Then, thanks to #LGBTQ advocates, homosexuality was suddenly ‘cured’ by @APAPsychiatric overnight.
Where are the endless research papers about the genetics and epigenetics of gay people?
Where are the warnings of “risk factors” for lesbians?
Where’s the pleading for “early intervention” for bisexuals?
What about environmental factors?!?!
We probably know less about gay people now than autistic people. But, we know enough not to funnel everything about LGBTQ people through a pathological frame.
All the questions we ask about autism are still there (and largely unanswered) for LGBTQ people.
Yet, we seem OBSESSED with the question of “why” when it comes to autistic people, but not with LGBTQ people.
The more we came to know and appreciate LGBTQ people, the less we focused on “why”.
We USED to constantly ask “why” when it came to LGBTQ people.
We asked “why” when we needed to explain them away. We asked “why” when we thought them a broken version of a straight norm.
Once we started to see LGBTQ people as normal, “why” became a less urgent question to ask.
That’s not to say “why” is a question we should stop asking when it comes to autism. It’s just that there are more urgent questions to ask.
Constantly focusing on “why” actually prevents us from understanding autism and autistic people more deeply.
Imagine if research and medicine (and all other approaches) paused to center autistic people, to ask “who are you?”
Autistic people have so, so many answers to the greatest ‘mysteries’ of autism. It’s that researchers and others are asking the wrong questions.
I’m autistic and gay. I’ll probably never know why I’m gay. At this point, I don’t care if I ever know why I’m autistic.
I’m here. I’m queer. I’m flappy. Get used to it.
It’s time for a better approach. Autistic people, our parents & those who love us, deserve more than this.
PS - And stop just asking “why” when it comes to other disabled populations as well. They too would be better served by asking better questions.
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Someone wrote that Judge Amy Coney Barrett would bring “heart” to ‘special needs’ if confirmed to the #SupremeCourt. After showing my respect for the person who wrote that, and understanding of where they were coming from, this was my response:
“Disabled people don’t need lawmakers or jurors to bring “heart” to ‘special needs’. That’s what has led to patronizing policy which has f%¥ked over the exercise of our equality and marginalized our full participation in society over-and-over-and-over again...
It’s one of the greatest things we organize and fight against and we will continue to fight against it until the law and policy makers recognize that we are just like everyone else...
The whole #BobWoodward thing reminds me that our better politicians understand the press will try to ‘get’ them, and that’s a good, healthy thing for our democracy. They respect and welcome that.
—> It’s a BS check.
Bad politicians think the press is there to serve them.
*I should say it’s not as much that the press tries to “get” politicians, but that they don’t regard a politician’s messaging priorities when they are reporting stories. That’s an amazing thing, and when I was a press officer it drove me up the wall.
I hated it, but I loved it.
And the #BobWoodward tapes remind me of #LouChibarro of the @WashBlade. When I was a press officer, he was so masterful in asking a question, letting you answer, then NOT SAYING ANYTHING.
The subject felt compelled to fill the silence with more information.
👨🍳💋
So, while I very much *feel* #SpoonTheory in my being, it all falls apart when trying to use it as a metaphor with others (or as an accommodation strategy for myself). I constantly miscount and lose them.
When speaking, or in meetings, I’m often asked by folks to explain spoon theory. I usually just turn to someone I trust and ask “Could you explain it?”
For myself, I’ve learned to just make myself stop, slow down, or turn down requests when needed — and to be ok with that.
I mean, I’m a huge supporter of spoon theory as a metaphor to explain things to others and as an accomodation peoole can use themselves. It just all gets tangled and anxiety-inducing for me.
I love to laugh at that, though. You kind of gotta.
I just watched a @GeographyNow segment on Sierra Leone & it seems like such an amazing place.
My neighbor for 15 years in DC was the Sierra Leonean embassy & I regularly ate at a Sierra Leonean cafe, but didn’t know much else. It’s now a place I’d desperately love to go.
And that smiling man in the third picture in my original tweet is Bubu (a genre of music I’ve been introduced to and listening to this morning thanks to @GeographyNow) musician #JankaNabay.