Thread by @StephDashNash

Good morning. Not looking for sympathy. Sharing the truth hoping to raise awareness.

Please remember Glioblastoma multiforme is a grade IV brain tumour. I am Not in remission. There is No Cure. I still have piece of the glioma in my head.

This unique form of brain cancer and the survivorship is extremely grim. The Life expectancy is 12-16 months and the five-year survival rate is only 6.8 percent.

Funding, research and support for Glioblastoma in Canada is extremely low. The support and funding is often in grouped in with non-malignant brain tumours. We only have one foundation in Canada which really only focuses on brain tumours not brain cancer.

I have attended several different Cancer support groups including a few for brain tumours. I've realized they have no clue on how to support the needs of Glioblastoma patients, caregivers and their families; especially the patients that fall into the 1%-6% 5yr survival ship

Over the 4 years &
4 months fighting GBM my treatments consisted of radiation and three different types of chemo (Temozolomide, Bevacizumab & Lomustine).

As someone who has been fighting over four years some of the long term effects of radiation to my brain are starting to show. My short term memory is just one of the many issues that's been compromised. It's a very difficult challenge.

If you see me with a pencil & notebook taking notes that's why. Dr. P suggested when I hear and see anything jot it down immediately. This will help me with shot term memory loss.

As a result of all the treatments my immune system has been compromised. This is the reason I got shingles & chickenpox at the same time leading to my diagnosis of Raynards disease, Neuromuscular and postherpetic neuralgia nerve damage.

We need a charity, funding and organization in Canada strictly for Glioblastoma. #truth #awareness #glioblastoma