It is worth pointing out that while Newson did argue that behavioural based approaches, which would include ABA/ PBS are unsuitable for PDA. It is not the same as saying that she thought ABA/ PBS was unsuitable for autism.
First main point is that Newson considered PDA to NOT be autism and to be clinically distinct from autism, i.e. it is not an autism subtype or an autism subgroup.
The other key point is that Newson argued that PDA was needed as it has distinct educational approaches and needs from autism. She placed substantial emphasis on this point: adc.bmj.com/content/archdi…
"“hanging together as an entity” is not enough if that entity is not significantly different from both autism and Asperger’s syndrome, either separately or apart" Newson et al, 2003, p599.
Newson on how PDA needs to be significantly different to autism.
"Praise, reward, reproof, and punishment ineffective; behavioural approaches fail.
Teachers need great variety of strategies, not rule based: novelty helps.
Indirect instruction helps.
Repetitive questions used for distraction, but may signal panic." p597
In the supplementary notes Newson provides 2 sides on educational differences between autism & PDA, makes some observations, such as PDA has higher exclusion rates than autism.
How autistic CYP benefit from structure, routine & rules; contrasts to how PDA requires, almost the opposite approach is mentioned. Worth pointing out that Newson notes the impact a child with PDA can have in a class of autistic pupils.
The apparent educational approaches for PDA vs autism is noted as a reason why it is problematic fitting PDA into the autism spectrum. journals.sagepub.com/doi/10.1177/13…
The point about behavioural based approaches on reward and consequences do not work with PDA, while a relationship-based approach (that many autistic persons would advocate today for autistic CYP) is recommended for PDA since 1998 (I think the date is).
So some of you may know that the school Newson clinic is based at, practices PBS. So some argue it is ironic they use PBS when Newson was against such based behavioural approaches.
The problem here is that Newson against the use behavioural approaches for PDA. That Newson thought PDA was clinically distinct from autism, and that PDA is NOT an Autism Spectrum Disorder.
Newson seems to be perfectly fine with behavioural approaches used for autism. The different educational approaches between PDA & autism, were an important justification for her, for why PDA is needed.
The crux of Newson's PDA research is that PDA is substantially different to autism (including Asperger's), that PDA is not an autism spectrum disorder. PDA has unique educational needs compared to autism. Therefore PDA needs to be diagnosed for such persons.
I do not want to say it, Newson probably would have been fine with PBS/ ABA being used with autism. Her work suggests she would have objected to PBS/ ABA being used for CYP with PDA instead.
It is important, we cannot really start generating valid knowledge on PDA with much of its research having flawed axiology and methodologies due to the erroneous assumption it is an ASD.
I standby the point that we should be de-platforming anyone is saying PDA is an ASD.
That moment when you realise, you need to define what you consider to be in all its glory and not.
First one, so this is what I consider PDA traits criteria to be (on the right hand side).
The wording is mainly based on Newson's clinical descriptions, except where Newson's assumptions are wrong. E.g. panic attacks being attributed to Surface Sociability trait.
I standby this comment, any credible or reputable autism expert should be saying PDA is NOT autism.
There are too many reasons for me to go into at this moment. Two example is how Newson said PDA is not autism, or did not base PDA on Triad of Impairment.
Newson's clinical interpretations do not fit well into accepted clincial practice, as she used her own definitions for 2 diagnostic groupings she placed PDA in.
Newson's definitions for Pervasive Developmental Disorders are broader than what was accepted including non-autistic persons in it, while not including other accepted PDD's of Childhood Disintegrative Disorder & Rett's Syndrome.
@AutismBoat@DrRubySapphire@AnnMemmott One cannot make the assumption from Newson's work PDA is part of the autism spectrum. Newson:
- Knew about triad of impairment in 1982, did not base PDA on it.
- There are important clinical differences that mean PDA is not autism.
...
@AutismBoat@DrRubySapphire@AnnMemmott ...
- She removed any cases who presented autism (even atypical) autism features from her data base.
- Explicitly tells us PDA is not autism & should not described as that.
- Never assessed her PDA cases for autism.
...
@AutismBoat@DrRubySapphire@AnnMemmott ...
- Newson never systematically investigated features of autism features in her database.
- Included non-autistic persons in her diagnostic groupings, including a broader than what is accepted version of Pervasive Developmental Disorders.
...
Some reasons why I use Newson's work: 1) Newson never viewed PDA as an ASD and this is reflected in her diagnostic criteria and clinical descriptions. She certainly never argued fitting PDA into 2 main diagnostic manuals based on accepted diagnostic groupings
2) Newson included non-autistic persons in her 2 diagnostic groupings, her own Pervasive Developmental Disorders grouping and her own NEW Pervasive Developmental Coding Disorder.
3) Newson never assessed persons with PDA for autism or systematically investigated autism features. 4) Newson often deliberately did things if she thought they helped other stakeholders, mainly parents.
@AnnMemmott@ElaineMcgreevy@EmilioLees@abaukdiscussion@milton_damian Well, I stumbled upon today that Christie seems to have been misleading people since 2007 about Newson's views on Pervasive Developmental Disorders & PDA. Do not know if it is deliberate or not. Either way not a good look.
Yes, refers to an out of date image from 1999 and not Newson's later views on the topic.
@AnnMemmott@ElaineMcgreevy@EmilioLees@abaukdiscussion@milton_damian Newson changed the diagram to include specific language impairments. She had wider definition & view PDD umbrella than what is accepted. Also said helpful to think persons with a PDD have coding issues.