ME & FIBROMYALGIA SIMILARITIES & CLUES: when cases of Fibromyalgia are followed longitudinally for months and years, a phenomenon oft observed is that patients retreat to daily bedrest in order to avoid pain. Profound weakness becomes exuberant & debilitating.
My clinical data collections over 15 years suggest that specific therapeutic actions support and seemingly help some Fibromyalgia sufferers escape the downward spiral of debilitating dysfunctions & dysautonomias attendant with Fibromyalgia.
Fibromyalgia is a human disorder I have studied & attempted to understand as to healing. Fibromyalgia is an affliction that assaults about 4% of the population, mostly women. ME, if assumed to be a million people in the US, would be a prevalence of 1/300, or 0.3%.
Clinical definition of Fibromyalgia includes pain all four quadrants of back. My clinical studies of 15 years identified Hyper-mobility Syndrome, a predominantly female disorder, & pelvic girdle injuries as key factors, amongst others, for inception & evolution of Fibromyalgia.
My guesstimate is that ME results from a sudden viral assault, which evokes acute & excess bedrest; leading to profound muscle wasting & loss of physical ability to leave an horizontal position; at least this is my theory.
My supposition is that best efforts to regain function in both ME & Fibromyalgia are to pursue the methods espoused within my threadreader of recent days. Absent any effective cure, my ideas are as good as any others.
Within my recent threadreader, I gave no data that my clinical methods are effective for ME. I only intended to suggest that they are merely my best clinical estimates about ways to seek improvement.
I hope that an etiologic factor can be discovered for ME. I would not be surprised to learn that it is a virus from the family of viruses that contribute a specific virus to evolution of a polio-like illness.
In any case, absent an etiologic factor, people with ME need to seek any & all therapies that might be mustered to improve their circumstances. There are precious few human disorders that afflict humans with such vicious devastation as does ME.
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