Most interesting question. Did they incur sudden viral illness, surgery, or accident rendering them bed-bound for weeks? Did they incur a pelvic girdle injury that disrupted tethering integrity of a sacroiliac joint? Did they incur devastating depression? We need to ask them?
If there are persons who developed ME/CFS/FIBROMYALGIA & who were previously ultra fit, could you inform us of any injuries or illnesses that predated onset of these disorders. Time line is important info. ME/CFS/FIBROMYALGIA evolve over months & years. Any tissue Hypermobility?
I do not do Facebook or understand the functions of that platform. If someone could solicit the above described survey on Facebook, this data would be very helpful to many. The cause of these disorders remains mysterious.
@cfsunravelled and Dan N. at that site might have some information about injury and illness events precedent to ME/CFS/FIBROMYALGIA & the time between injury/illness & development of these disorders.
For those with Fibromyalgia there is an authoritative work that suggests etiology: Dr. Rodney Grahame, M.D., former President of the British Rheumatologic Association, editor of “Hypermobility, Fibromyalgia, & Chronic Pain”, 2010; a must read for those with these disorders.

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More from @BadgleyLaurence

17 Nov
ME & FIBROMYALGIA SIMILARITIES & CLUES: when cases of Fibromyalgia are followed longitudinally for months and years, a phenomenon oft observed is that patients retreat to daily bedrest in order to avoid pain. Profound weakness becomes exuberant & debilitating.
My clinical data collections over 15 years suggest that specific therapeutic actions support and seemingly help some Fibromyalgia sufferers escape the downward spiral of debilitating dysfunctions & dysautonomias attendant with Fibromyalgia.
Read 11 tweets
15 Nov
ME/CFS/FIBROMYALGIA/LONGCOVID: “the first domino”. What a most interesting question! The short answer is the tissues. The long answer addresses the WHY and the HOW, and that shall be a nice weekend Twitter project.
A reader of my last threadreader, about Vaginismus and Fibromyalgia, asked, “what is the first domino”, the primary cause. This is a most interesting question because, if the primary cause is known, then the cure follows naturally.
An hallmark symptom of the ME/CFS/FIBROMYALGIA/LONGCOVID constellation of disorders is massive fatigue and withering body weakness. Another is cognitive disarray (confusion & anhedonia). Why?
Read 92 tweets
14 Nov
SACROILIAC JOINT SUPPORT: is indeed provided by belts and garments (tight jeans, yoga pants, & spanx) which engage the sacroiliac joints into “form closure”, a concept first espoused by Dr. Andre Vlemming, who is a world class expert on sacroiliac joint function & dysfunction.
Loose & injured sacroiliac joints enable rotational shifts of the joint about a virtual transverse axis, and such shifts painfully stretch the ligament systems that tether these large joints, which at 17 cm squared in area are the largest joints in the axial spine.
The academic medical literature identifies these joints as the primary pain generators in 13-30% of persons who suffer from chronic low back pain. Yet countless patients undergo failed back operations without being afforded opportunity to evaluate these joints.
Read 10 tweets
14 Nov
CHRONIC WIDESPREAD PAIN DIAGNOSIS: perhaps the best clinicians to diagnose this disorder are Osteopaths. Their education parallels that of Allopathic doctors, but with greater emphasis on musculoskeletal diagnosis.
The caveat is that since the 1970’s (I seem to remember) when Osteopaths were mandated to have an education skills equal to Allopaths, many Osteopaths have since gravitated toward lucrative medical specialities of all kinds.
Osteopaths who have remained true to their global view of functions of the human organism as to diagnosis, skillful healing techniques, & rational manipulation are rare. They can often be found in the yellow pages (which dates my own era of practice) of cosmopolitan centers.
Read 9 tweets
11 Nov
VAGINISMUS: is not a psychological problem. When these women are physically examined they are usually found to have laxity of ligaments of one of the sacroiliac joints. Pain generation from this joint subluxation radiates to the mid-pelvis.
There are 16 clinical examinations that physicians can do in the exam room to detect sacroiliac joint subluxation chronic pain disorder syndrome, but most physicians are ignorant of these examinations.
Some of the Signs are: Forward Flexion Test, Fortin Sign, Gillette Sign, Gaeslen’s Sign, Sacral Shear, Pelvic Compression, Thigh Thrust, Active Straight Leg, & the Badgley Book Sign. Another is to have the patient hop up and down on one leg to arouse ipsilateral buttock pain.
Read 21 tweets
27 Oct
AUTONOMIC CONTROL OF FUNCTIONAL DISORDERS:
There is no need to default to psychological explanations for aberrations of human behavior. Behavior is much controlled by the brain, autonomic nervous system, & hormones, which effect behavior through lens of the brain.
Let’s take bipolar behavior. What tangled psychology might be modeled to explain periodic fluctuating manic/depressive behavior? None has been articulated. Simple explanation is environmental & social activities can stimulate behavioral events via autonomic nervous system (ANS).
Loss of sleep can trigger adaptive behavioral responses via autonomic nerve system & endocrine perturbations. Physical inactivity due to pain can do likewise. Unfortunately, modern clinical sciences lack teachable methods to monitor these perturbations.
Read 50 tweets

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