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27 Nov, 10 tweets, 4 min read
👧 Supporting your child's mental health 👦

(A thread...)
👨‍👩‍👦 Our Support Services Team have been hearing from lots of people who's children are experiencing anxiety around going to school, and are worried about the risk of bringing the virus home with them and infecting a parent who has #bloodcancer. 1/
🏥 This is a difficult situation for both children and parents. Sometimes, your treatment team might have access to psychological support for your children or teenagers, or an option to get support as family – it's worth asking. 2/
👇 Here are some other resources that may be helpful in supporting your child's mental health... 3/
◾ @YoungMindsUK - a charity supporting parents worried about a child's or teenager's mental health. They have a section on their website about #coronavirus. 4/ youngminds.org.uk/find-help/look…
◾ @FruitflyC - a project aimed at supporting parents affected by cancer supporting their children at the same time – they have quite a few psychological support resources on their website. 5/ parents.fruitflycollective.com
◾ @TheMixUK - a charity specifically supporting under-25s. They have a web page about mental health and coronavirus. 6/ themix.org.uk/mental-health/…
◾ @NHSuk - There’s also some tips and advice from the NHS website about children's mental health. 7/ nhs.uk/oneyou/every-m…
❗ For more information about #bloodcancer, #coronavirus, and supporting your child's mental health - head to our website. 8/ bloodcancer.org.uk/support-for-yo…
❤️ And don't forget - our friendly Support Team are always here for you if you're feeling worried or need somebody to talk to. Get in touch today and they'll be happy to talk through your concerns. 9/

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More from @bloodcancer_uk

Blood Cancer UK Profile picture
27 Nov
BREAKING: people with blood cancer who are extremely clinically vulnerable have been moved up the provisional priority list for a vaccine. They are now at the same priority level as people aged over 70. This is great news! /1
Previously, younger people with blood cancer were only expected to get a vaccine after everyone aged 65+ had been offered one. But the new priority list better reflects the fact that people with blood cancer are especially vulnerable to #COVIDー19. /2
There’s also the good news that adults who live with people with blood cancer will also get priority. This is important because any vaccine might not work as well in people with compromised immune systems. /3
Read 5 tweets
Blood Cancer UK Profile picture
27 Nov
⚠️ The Government yesterday published guidance for people in England who are clinically extremely vulnerable (CEV), for after England returns to the tier system on December 2nd.

Here are our thoughts (thread). 1/
gov.uk/government/pub…
It says: “your employer may be able to furlough you under the Coronavirus Job Retention Scheme, which has been extended until the end of March 2021”. 2/
This applies to all tiers, so if you can’t work from home you should speak to your employer about whether this is possible. But we’re concerned that elsewhere in the guidance it says that people who are CEV and can’t work from home can carry on going into work. 3/
Read 5 tweets
Blood Cancer UK Profile picture
22 Jun
⚠️ Shielding announcement - 22/06/20 (England only) ⚠️

Shielding has been incredibly tough for many people, but this blanket approach to lifting it is only going to add anxiety in many cases. 1/
This announcement does not give people greater freedom, as the shielding guidelines have only ever been optional.

Instead, it risks taking away people’s freedom not to go to work or to the supermarket if they do not feel it’s safe to do so. 2/
The government needs to think again and continue to support those most vulnerable to becoming seriously ill from the coronavirus, or we could see people being forced to choose between their financial security and their health. 3/
Read 8 tweets
Blood Cancer UK Profile picture
11 Jun
Today is #BiomedicalScienceDay2020 - and what better way to celebrate than sharing our latest #ResearchSpotlight with you all!

🔬 This month we're celebrating the work of Professor James Allan, who leads on a Blood Cancer UK funded project and is based at the @UniofNewcastle.
💉 James' work is about understanding how unique genetic changes in acute myeloid leukaemia (AML) can be used to tailor treatment.

🧓 AML is most common in the elderly and many of these people cannot have #chemotherapy because of the harsh side effects it causes.
💊 To get around this, James and his team are looking to find ways of using other existing therapies more strategically, based on specific characteristics of these peoples' disease. This is called "stratified medicine."
Read 5 tweets
Blood Cancer UK Profile picture
7 Jun
📆 Today is #CancerSurvivorsDay 📆

Here at Blood Cancer UK, we want to use today to raise awareness of what #survival means to those who live with slow-growing (chronic) #bloodcancer, and share some of their stories.

Read the rest of our thread to find out more.... 👇
👨‍👩‍👦As many of our community will know, surviving blood cancer can be a very different experience to overcoming some other types of cancer.

🔎For those with chronic blood cancer, 'survival' means learning to adapt and finding new ways of living to accommodate ongoing symptoms.
😴 This is the case for Erica, who has chronic lymphocytic leukaemia (CLL) and experiences extreme tiredness (fatigue) as a result.
Read 8 tweets
Blood Cancer UK Profile picture
31 May
The Government has announced it is relaxing the guidance on shielding, saying that people with blood cancer can now leave their homes in some circumstances. But while this is something people with blood cancer have looked forward to... /1
...the Government’s handling of it has added to the worry in our community.

The way it has announced this on a Saturday night with no warning or consultation with charities and clinicians has created confusion. /2
This adds to the impression already created that the shielding group isn’t high enough on its list of priorities.

We will be writing to the Government to let them know it needs to do better. /3
Read 5 tweets

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