So the more I reflect on the assumption that PDA is ASD/ autism subtype/ subgroup/ profile; the more rediculous it seems to me.
I am reflecting on the agenda of O'Nions et al (2016), where they seek to find PDA DISCO questions that can identify what the authors think is, in the autistic population. This is while being mistaken about Newson's PDA research.
Newson was not trying to find PDA in autistic persons, she was trying to show PDA is significantly different to Kanner's autism & Asperger's Syndrome, and thus PDA is needed. Newson included in non-autistic persons in her sample.
Removed cases of PDA with autism features from her database. Said PDA is not autism and should not be viewed as such. Newson was also trying to find what PDA profile fully looked like.
More recently, it has been acknowledged that not all of Newson's sample would be diagnosed as autistic (by some). I would argue majority of them would not under strict DSM-5 autism criteria. Tangent.
Back to the approach to O'Nions et al (2016). So they had preconceived ideas of PDA, aimed to make it a "meaningful" autism subgroup. Arbitrarily choosing a threshold of 30% or less.
O'Nions et al (2016) argue their research allows for an honest picture of PDA to be represented in their sample.
Problem is, it an arbitrary threshold for PDA and they have arbitrarily chosen to view PDA as autism.
Considering that others view PDA as being seen in non-autistic persons, this is supported by limited evidence, including Newson's research (as noted above). So point is O'Nions et al (2016) cannot assume PDA is a meaningful autism subgroup.
The author's opinions are not sufficient to make the assumption that PDA is an autism subgroup either.
What is making me think it is even more ridiculous, is that different clinical populations will have different characteristics associated to them. We know that many autism comorbids present differently outside of autism.
So O'Nions et al (2016) have tried to produce a set of PDA DISCO questions, to make PDA an autism subgroup. Including changing its wording to be more autism-like. Such as "Apparently manipulative behaviour". These eleven questions are widely avaliable.
The article is open access and has been accessed about 25000 times last time I checked.
This is a problem as people looking to do PDA research in non-autistic populations probably have 11 PDA DISCO questions that are not designed to differentiate PDA in said populations.
There is nothing to say PDA features are more common than 30% non-autistic populations. Which PDA features are more or less common is predicted PDA populations. Or if said PDA features present slightly different to autism, (which they likely do).
So what use are these 11 revised PDA DISCO questions for searching PDA in non-autistic population samples?
I would point out that the less than 30% of autistic population cut-off was chosen as O'Nions et al (2016) say that features commonly associated to autism are unlikely to produce viable subgroups.
If a feature is seen in less than 30% of autistic population it is probably related to autism comorbids instead of triad/ dyad of impairment (what underpins autism dx criteria).
I.e. using non-autistic features to divide autistic persons. Then by definition PDA is not autism.
I have this point out elsewhere.
Sorry, this is a rant. It is a valid rant. Essentially one can use PDA tools designed to find PDA in autistic persons, to research and diagnose PDA in non-autistic persons.
*can not use*
• • •
Missing some Tweet in this thread? You can try to
force a refresh
@ekverstania@lynchauthor@NeuroClastic I think it needs more thought being put into to be honest, into exactly how it works. I think that "autistic features", i.e. what many would call ASD, is a smaller component of autism, which is how autistic features interact with each observer's bias.
@ekverstania@lynchauthor@NeuroClastic Thinking aloud, I suspect autistic features themselves cannot be subtyped, but the broader autism phenomena probably can be.
You can have subtypes/ subgroups, but it they routed in observers bias, instead of intrinsic differences between autistic persons.
@ekverstania How I define autism is an interesting question.
@ekverstania I do not have time to do a blog post on this so I will do my best to cover here briefly.
@ekverstania First point is that, I think autism is complex, it is not a simple concept. Any such approach to do so, is going to have issues. At the same time, depending on the situation, I can be happy working with such models, like DSM-5 autism criteria.
Finally got my hands on the Help4Psychology PDA article. Only skimmed over parts of it so far. Seeing they assumed PDA is linked to autism and base hypotheses on that. Still in my mental "pseudoscience" pile with much autism research, like most ABA research.
While it references some critical literature, it does not reference any my own, @milton_damian or @Allison66746425 scholarship. So much for engaging with critique.
Also Conflict of Interest seems not to be disclosed either in how Judy Eaton is a member of PDA Development and how she stands to gain from PDA being accepted as part of ASD & that her clinical practice is based on specialising in PDA.
@ekverstania You can add this response to the list of parallel's to PDA.
I am all for experiencing the validity of lived experience & empathising with other's perspectives.
@ekverstania From a literature perspective, we cannot successfully divide autism. Differences between subtypes break down under scrutiny.
Generally, autistic persons do not want autism to be subdivided too.
@ekverstania So if something is seen differently in any "subgroup" it is often due to something causing the difference. If autism itself, does not cause a behaviour or core feature of then this construct by definition cannot be autism.
@Gubb1e There are too many problems with that logic though.
First, PDA strategies are good practice.
Similar strategies are widely practiced inside & outside of autism, independently of PDA and have been for years.
@Gubb1e Most disorders are not that good at guiding prognoses or support packages.
There is no evidence of differential treatment between suggested autism subtypes.
SEND system is needs based, CYP should NOT need a PDA dx to get appropriate strategies.
@Gubb1e Arguments about rights to a PDA dx due to its strategies, are universal & therefore applicable to many persons, including many non-autistic persons.
After much musing, this afternoon. I think a thread on partly why any credible or reputable autism expert should say PDA is NOT autism is probably warranted.
It centers on Newson’s work; it is simply can NOT be used to argue PDA is autism. She does not draw PDA overlapping autism. Saying PDA has a different cause of social communication issues to autism.
First point, Newson said this herself, that PDA is not autism and including not rebranded autism (particularly Aspergers). adc.bmj.com/content/archdi…