So I have been briefly looking into how OCD is assessed. I came across this image. Crikey, it just makes me think even more that PDA should be viewed as an OCD & related disorder.
It is acknowledged that demand avoidance behaviours have a loose hierarchy, so the more anxious (distressed) the PDAer is, more extreme behaviour they display to assert the self-agency. This is covered in the work of @Allison66746425 journals.sagepub.com/doi/full/10.11…
So for PDA a person might get temporary relief, until they exert extreme behaviour, often shocking or violent behaviour. Which then causes other person to withdraw demand, giving relief.
Obviously, the world is full demands and perceived pressures. So a person with PDA would naturally have obsessive demand avoidance, as described by Newson et al.
When looking at the affects of OCD and how it presents, it is familiar to PDA. In relation to the amount of time and effort lost to the demand avoidance (compulsive) behaviours.
How a person with PDA would often develop unhelpful strategies to manage their demand avoidance is similar to unhelpful strategies developed by those with OCD.
Another feature of OCD is how their compulsions can interfere with social interactions and relationships. Which is exactly the situation described by @DrJudes03 in her ADOS data, the anxiety driven demand avoidance impacts their interaction with clinician.
Which is why the ADOS is incorrectly interpreting these behaviours as social communication issues. ADOS is NOT designed to assess for PDA features. It is to be expected that it will mis identify anxiety based RRBISa s social communication issues.
Context to this, is that I booked a GP appointment to try and get referred for assessment for some autism comorbids.
A core feature of OCD is how the obsessive thought causes anxiety or distress. Which is how demands are envisioned in PDA.
An important point here is, that in the DSM-5 autism criteria, is that if a feature can be better explained by another disorder, then it cannot be diagnosed as autism.
Obviously implication is that if PDA is better explained as an OCD & Related Disorder, it cannot be diagnosed as a form of autism:
Autism subtype.
Autism subgroup.
Autism profile.
Etc etc.
While I consider this to be little more than propaganda in places and making assumptions detached away from the evidence base. Also that some people do not have the expertise to be making such assumptions.
@ekverstania@lynchauthor@NeuroClastic I think it needs more thought being put into to be honest, into exactly how it works. I think that "autistic features", i.e. what many would call ASD, is a smaller component of autism, which is how autistic features interact with each observer's bias.
@ekverstania@lynchauthor@NeuroClastic Thinking aloud, I suspect autistic features themselves cannot be subtyped, but the broader autism phenomena probably can be.
You can have subtypes/ subgroups, but it they routed in observers bias, instead of intrinsic differences between autistic persons.
@ekverstania How I define autism is an interesting question.
@ekverstania I do not have time to do a blog post on this so I will do my best to cover here briefly.
@ekverstania First point is that, I think autism is complex, it is not a simple concept. Any such approach to do so, is going to have issues. At the same time, depending on the situation, I can be happy working with such models, like DSM-5 autism criteria.
So the more I reflect on the assumption that PDA is ASD/ autism subtype/ subgroup/ profile; the more rediculous it seems to me.
I am reflecting on the agenda of O'Nions et al (2016), where they seek to find PDA DISCO questions that can identify what the authors think is, in the autistic population. This is while being mistaken about Newson's PDA research.
Newson was not trying to find PDA in autistic persons, she was trying to show PDA is significantly different to Kanner's autism & Asperger's Syndrome, and thus PDA is needed. Newson included in non-autistic persons in her sample.
Finally got my hands on the Help4Psychology PDA article. Only skimmed over parts of it so far. Seeing they assumed PDA is linked to autism and base hypotheses on that. Still in my mental "pseudoscience" pile with much autism research, like most ABA research.
While it references some critical literature, it does not reference any my own, @milton_damian or @Allison66746425 scholarship. So much for engaging with critique.
Also Conflict of Interest seems not to be disclosed either in how Judy Eaton is a member of PDA Development and how she stands to gain from PDA being accepted as part of ASD & that her clinical practice is based on specialising in PDA.
@ekverstania You can add this response to the list of parallel's to PDA.
I am all for experiencing the validity of lived experience & empathising with other's perspectives.
@ekverstania From a literature perspective, we cannot successfully divide autism. Differences between subtypes break down under scrutiny.
Generally, autistic persons do not want autism to be subdivided too.
@ekverstania So if something is seen differently in any "subgroup" it is often due to something causing the difference. If autism itself, does not cause a behaviour or core feature of then this construct by definition cannot be autism.