I hope all profs realize that your chronically ill students are not doing well right now. My hospital is so focused on vaccination and COVID that important tests (one to measure if I'm digesting food, the other to see if I'm getting proper blood flow to my brain) 1/4
Have been scheduled for July. So I'm finishing my dissertation while pretty sick without some vital organs working. And my meds for these issues have been on prior authorization for over a month bc the pharmacy is also trying to figure out vaccination and bc insurance sucks. 2/4
Your chronically ill students aren't getting their normal care. And some may not be able to afford their normal care routines right now bc of the pandemic. The healthcare crisis extends far beyond COVID-19 itself. 3/4
Please keep in mind that students are dealing with this along with all the extra stress of the current moment. And please for the love of God recognize that graduating students are floundering knowing that they're going out into a decimated economy. 4/4 #AcademicChatter

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More from @DisabledAcadem

10 Jan
I'm tired of hearing "well people are uncomfortable with disability bc they're not exposed to disabled ppl." If disability matters then invest in us. Make it a point to hire us. Make it a point to give us platforms. 1/7
There are so many of us wedged out of the academy from undergrad to grad school and beyond. So many of us who are highly qualified to teach in disability studies related fields. So many of us that WOULD expose students to disabled scholars/mentors/advocates. 2/7
Fight to add Disability Studies departments, minors, and majors at your university. It infuriates me that roughly 20 percent of undergrads are disabled and they don't get to learn about their culture, history, or people. If I had taken #DisHist and #DisabilityStudies courses 3/7
Read 7 tweets
9 Jan
I can't begin to explain the amount of anxiety and backtracking that I have experienced when I moved for grad school and I lost a whole team of doctors. Doctors who had helped me make sense of my comorbid conditions for 8 years. 1/10
I lost them because I had the audacity to move for graduate school to a part of the country that BCBS New England did not cover. So I started the hunt again. But it was both unaffordable and a waste of time. I needed a GI, cardio, allergist, neurologist, PCP, and PT. 2/10
I was able to get a cardiologist because of an emergency room trip and referral. I wasn't able to find anyone else who treated my conditions at my uni. And I thought fine, I can make do as I did in undergrad by going on Christmas break and summer break back home for care. 3/10
Read 10 tweets
8 Jan
I mentioned I was looking into DEI jobs and a colleague told me "burn out in those jobs is like two years."

I've been in the academy for 10 years as a disabled academic. I hate the term burn out. It doesn't convey the reality that disabled scholars face - discrimination. 1/4
It's about advocating for yourself and others and being told to your face that your needs don't matter and you're not worth the cost. I hate the term "burn out." Let's not use a vague phrase for something far more underhanded and harmful. 2/4
I'm tired of promoting my humanity in the face of a capitalist society that tells me my needs are too expensive so I don't deserve shit. But I don't have the choice to do DEI work. I already have to do that work just to survive in the academy. 3/4
Read 4 tweets
4 Jan
This term I am (hopefully) graduating! Here are some strategies I'm trying out to manage anxiety and overworking 1/9
1. Check fellowships and job postings once a week and once a week only

2. Use printed calendars to map out chapter deadlines and edits 2/9
3. Keep a running "to do" list so I don't feel anxious about forgetting future edits/additions

4. Accept that the defense is about imagining a better manuscript. This is a starting point. It can't be perfect and it won't be. 3/9
Read 9 tweets
2 Jan
This year is a good reminder that some students don't return to spring semester "refreshed" or ready to go. For students with complex chronic illnesses and disabilities, winter break is often a time to play catch up with their medical team or a time to try to secure a dx. 1/9
Students need those dx to get accommodations, but it's incredibly hard to get them. The costs for testing and appts can be excessive, specialists may be far away, and getting the right Dr is hard. These extended hospital closures are creating new barriers as well. 2/9
Over break so far I have 1. Fainted during bloodwork 2. Found I have double the inflammatory markers of an average person (Drs still not totally sure why) 3. Been dx with small fiber neuropathy 4. Undergone a punch biopsy 5. Been given a preliminary RA dx. 3/9
Read 9 tweets
2 Jan
So floored to see so many new followers! I'm @Nicole_Lee_Sch and I (for now) run the social media acct for the DAC. Collectively, our membership provides support to disabled individuals of higher ed. If you'd like a link to our server feel free to DM 1/7
Also check out our website where we have basic resources on accessibility and guest blog posts written by our membership. If you'd like to write something about disability and higher ed feel free to reach out! 2/7
Hopefully our membership will continue to grow throughout 2021. As the founder of the DAC I am so excited to see all that we have done, and to imagine all that we might do. Our members have supported one another in so many ways! 3/7
Read 7 tweets

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