If you’re the parent, teacher, caregiver, friend, etc. to an autistic person, keep this in mind:

When you want us to do something, you have to be explicit about it.

If my parents want me to do something but don’t tell me the specifics, I have no idea what’s expected of me.
This usually creates misunderstandings related to chores and other household tasks.

If I don’t know what’s expected of me, there’s no way for me to do whatever is needed.

But often my parents seem to think it’s okay to leave things implied, because I “should” know what to do.
Here’s the problem with that:

Autistic people don’t make as many assumptions in social situations, and we often have trouble making inferences based on things people say.

We tend to take statements literally, so you can’t imply things & expect us to always pick up on them.
This issue has gotten more pronounced since I’ve turned 18 and my parents’ expectations about my level of independence have shifted.

They want me to “take initiative.”

But they’re often not specific enough about what I should take initiative on, versus what they’ll help with.
For example, today I had to go mail a package.

I avoid driving whenever possible because it’s overwhelming and anxiety provoking, so my mom agreed to drive me.

Without telling me, she had assumed that I would automatically go wipe the snow off the car for her first.
But I had no idea I was supposed to do that, and she told me 15 minutes before the time I had to get the package in the mail.

I wasn’t able to budget my time earlier in the morning to allow for scraping snow off the car, because I hadn’t known that it was a task on my list.
So it was both surprising and stressful when I was informed that I only had ~5 minutes to completely de-ice and de-snow the car.

I was frustrated because of this unexpected demand that put me in a time crunch.

She was frustrated that I hadn’t “taken initiative” earlier.
This is an example of cross-neurotype miscommunication.

My mom thought it was clear that the social expectation was that I would take responsibility for every aspect of the process except driving.

But I didn’t know that, because she never told me explicitly. It was implied.
She didn’t understand why I didn’t pick up on what she expected, and I didn’t understand why she would assume I knew something she never told me.

This is an extremely common dynamic between autistic people and those who expect things of us.

It’s not something we can control.
Autistic people have trouble making inferences. We don’t easily pick up on unspoken social expectations.

That is something that can’t be changed.

What can change is how you interact with us and accommodate us.

Please be clear and specific. It will make life much easier.

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More from @autisticats

20 Jan
CW: autistic meltdown, prone restraint, death

This is an extremely hard thing for me to write about.

But in Sia’s new movie, the autistic character Music is shown having several meltdowns and being held in prone restraint.

(Leaked video via Auteach on TikTok)
For those who don’t know, prone restraint is extremely dangerous.

Just a few days ago, the story of a 16 year old autistic boy named Eric Parsa came up on the news.

He died last year at the hands of police, by being held in prone restraint and sat on during a meltdown.
When I was younger, I had pretty frequent meltdowns.

My parents would put me in prone restraint, roll me up into a blanket so I couldn’t move my limbs, and then sit on me.

I was an 80 pound child, and they were adults.

I remember desperately gasping, “I can’t breathe!”
Read 9 tweets
19 Jan
There’s been a lot of conversation recently in the United States about raising the minimum wage to $15/hr.

As you talk about this, please remember that it’s currently legal to pay disabled people far below minimum wage.

It’s legal to pay us less than $1/hr, bc we’re disabled.
“[In the] 1938 Fair Labor Standards Act... there’s a clause that allows any firm with a 14(c) certificate to pay out wages based on productivity or ability... These wages have been recorded to be as low as three cents per hour.”

forbes.com/sites/sarahkim…
The supposed logic behind this loophole is that disabled people are “less productive” than the average worker.

But for most jobs, especially with the right accommodations, that just isn’t true.

So what ends up happening is that disabled labor is just severely exploited.
Read 10 tweets
18 Jan
Are you looking for some good autistic representation in film?

Then this thread is for you!

Here are 9 films and TV shows with autistic subjects/characters who are portrayed accurately and sensitively.

I have watched (and enjoyed) everything I’m about to discuss.
First up is Loop, a Disney-Pixar animated short film.

It’s about a nonspeaking autistic girl named Renee (who is voiced by an autistic actress), and her interactions with a neurotypical boy named Marcus. Image
Next is The Reason I Jump, directed by Jerry Rothwell.

This is a documentary about five nonspeaking autistic people around the world. It’s also a stunning, immersive piece of visual art. Image
Read 10 tweets
5 Jan
There’s been some discussion in the autistic community about masking, representation, etc. specifically on TikTok.

I think one important thing for everyone to note is that TikTok is not a very accessible medium of communication for a lot of autistic people, including myself.
The reason why there aren’t a ton of high-profile autistic creators on TikTok who have trouble with spoken communication, etc. is I think partially because of the spoken language, video-based format of the app itself.

It’s also because of the way the algorithm is set up.
I personally have a super hard time articulating myself verbally in the manner that TikTok requires. So I use Instagram, Twitter, Tumblr, etc. to do my advocacy work.

And the thing about that is, nobody would know I have that difficulty just by reading my writing.
Read 7 tweets
4 Jan
CW: ableism, Sia

Yesterday, in an interview on an Australian TV show, Sia said this about her decision to cast Maddie Ziegler as a nonspeaking autistic person in her new film:

“It is ableism... but it’s actually nepotism because I can’t do a project without [Maddie].”
When I saw this, I was stunned.

For those who don’t know, nepotism is “the practice among those with power or influence of favoring relatives or friends, especially by giving them jobs.”

So yes, her decision was ableist and nepotistic. But why would she just outright say it?
Ableism is bad. Nepotism is bad. So I was asking, “where is Sia’s sense of self-preservation?”

Then, as I was talking with my girlfriend Abby, she said:

“[Sia] doesn’t need to have [a sense of self-preservation]. No one is holding her accountable but the autistic community.”
Read 8 tweets
29 Dec 20
We’ve gained thousands of followers in the past few months, many of whom may not be well-versed on what autism actually is.

So, here’s a basic run-down of how autistic people’s brains work, with links to sources where you can learn more.

Let’s begin!
Neurotypical brains are organized so that higher-order concepts affect the perception of low-level sensory stimuli.

Meaning, NTs have a hard time seeing “trees” when they know (or think) they’re looking at a “forest.”

This isn’t the case for autistic people.
Autistic people can accurately perceive low-level stimuli without being thrown off by higher-level (global) cognitive processes.

This is referred to as “reduced global to local interference.”

It means we can see the “trees” despite knowing that we’re looking at a “forest.”
Read 10 tweets

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