Yesterday, in an interview on an Australian TV show, Sia said this about her decision to cast Maddie Ziegler as a nonspeaking autistic person in her new film:
“It is ableism... but it’s actually nepotism because I can’t do a project without [Maddie].”
When I saw this, I was stunned.
For those who don’t know, nepotism is “the practice among those with power or influence of favoring relatives or friends, especially by giving them jobs.”
So yes, her decision was ableist and nepotistic. But why would she just outright say it?
Ableism is bad. Nepotism is bad. So I was asking, “where is Sia’s sense of self-preservation?”
Then, as I was talking with my girlfriend Abby, she said:
“[Sia] doesn’t need to have [a sense of self-preservation]. No one is holding her accountable but the autistic community.”
Sia is correct about what she did, and why. It’s something that autistic people already knew.
The problem is that she’s able to admit this, and face no consequences for it.
Autistic people are basically the only ones pushing back. And we’re not being taken seriously.
Sia herself is in agreement that what she did was ableist.
So what is there left for autistic people to do? Are we now in a situation where we have to reiterate that ableism is bad, actually?
Because it’s now clear that Sia simply doesn’t care. Neither do her fans.
I think at this point, the most important thing to do is educate the general public about why all of this is not okay.
Maybe that will make a dent on the amount of people who watch the film.
And if not, at least more people will have heard the autistic point of view.
I know it feels like nobody is listening to us, because Sia isn’t.
But my first post about this situation, which is on Instagram, has over 100,000 likes at this point.
What that tells me is that even though Sia might not be ready to listen, a lot of people are.
So if you’re not autistic and this situation upsets you, please speak up about it.
Please amplify the voices of autistic people who are trying to talk about this issue but keep getting ignored.
Something big needs to change here. Autistic people’s opinions are not disposable.
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There’s been some discussion in the autistic community about masking, representation, etc. specifically on TikTok.
I think one important thing for everyone to note is that TikTok is not a very accessible medium of communication for a lot of autistic people, including myself.
The reason why there aren’t a ton of high-profile autistic creators on TikTok who have trouble with spoken communication, etc. is I think partially because of the spoken language, video-based format of the app itself.
It’s also because of the way the algorithm is set up.
I personally have a super hard time articulating myself verbally in the manner that TikTok requires. So I use Instagram, Twitter, Tumblr, etc. to do my advocacy work.
And the thing about that is, nobody would know I have that difficulty just by reading my writing.
I watched the Pixar movie Soul with my family last night, and I really enjoyed it.
I think one of the reasons I loved it so much, was that 22’s experience of life in Joe’s body was so reminiscent of autistic people’s experience of life every day.
22 has never experienced life before, so she comes into every situation as an outsider.
She’s not aware of social rules, so she does things that Joe would never do, or that seem “odd.”
She’s never had a body before, so her senses are extremely heightened.
Because everything is new to her, 22 is very sensitive and easily overwhelmed by sensory stimuli.
She gets frightened by crowds of people, sirens, loud noises, etc. in NYC and then ends up running away due to sensory overload (which could be viewed as elopement).
So-called “communicative deficits” in autism are often just the result of cross-neurotype interaction.
For those who want to learn more about autistic communication styles, I’ve compiled several studies that I’m going summarize.
Hopefully this will teach you a thing or two.
“Autistic peer-to-peer information transfer is highly effective” (2020)
Demonstrates that while NTs and autistics often experience communication breakdown, autistic people can convey and transfer information effectively among ourselves.
Autistic people (generally) prefer to interact with other autistic people, and experience a greater feeling of connection with each other as compared to NTs. So, we’re capable of establishing social rapport.