There’s been some discussion in the autistic community about masking, representation, etc. specifically on TikTok.
I think one important thing for everyone to note is that TikTok is not a very accessible medium of communication for a lot of autistic people, including myself.
The reason why there aren’t a ton of high-profile autistic creators on TikTok who have trouble with spoken communication, etc. is I think partially because of the spoken language, video-based format of the app itself.
It’s also because of the way the algorithm is set up.
I personally have a super hard time articulating myself verbally in the manner that TikTok requires. So I use Instagram, Twitter, Tumblr, etc. to do my advocacy work.
And the thing about that is, nobody would know I have that difficulty just by reading my writing.
The other aspect is that TikTok’s algorithm automatically favors autistic people who are able to mask to fit NT definitions of what it means to be “articulate,” and “engaging” on camera.
NTs are more likely to interact with videos of autistic people who appear that way.
That’s nobody’s fault but wider society. And from what I’ve observed, the advocates on TikTok who present that way recognize that, and do their best to uplift more marginalized voices.
I think that we should work together as a community to make TikTok more accessible.
But TikTok is also just one platform among many. And it’s completely okay if not all autistic people feel comfortable using it as a medium for advocacy work.
I could start using TikTok to speak about issues that matter to me, but I would find it really difficult. That’s okay.
So I think we need to recognize that different social media platforms cater to different people’s communication abilities.
TikTok will probably never be as accessible to me as it is for many others, and I’m okay with that.
It’s okay for my advocacy to be based in writing.
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Yesterday, in an interview on an Australian TV show, Sia said this about her decision to cast Maddie Ziegler as a nonspeaking autistic person in her new film:
“It is ableism... but it’s actually nepotism because I can’t do a project without [Maddie].”
When I saw this, I was stunned.
For those who don’t know, nepotism is “the practice among those with power or influence of favoring relatives or friends, especially by giving them jobs.”
So yes, her decision was ableist and nepotistic. But why would she just outright say it?
Ableism is bad. Nepotism is bad. So I was asking, “where is Sia’s sense of self-preservation?”
Then, as I was talking with my girlfriend Abby, she said:
“[Sia] doesn’t need to have [a sense of self-preservation]. No one is holding her accountable but the autistic community.”
I watched the Pixar movie Soul with my family last night, and I really enjoyed it.
I think one of the reasons I loved it so much, was that 22’s experience of life in Joe’s body was so reminiscent of autistic people’s experience of life every day.
22 has never experienced life before, so she comes into every situation as an outsider.
She’s not aware of social rules, so she does things that Joe would never do, or that seem “odd.”
She’s never had a body before, so her senses are extremely heightened.
Because everything is new to her, 22 is very sensitive and easily overwhelmed by sensory stimuli.
She gets frightened by crowds of people, sirens, loud noises, etc. in NYC and then ends up running away due to sensory overload (which could be viewed as elopement).
So-called “communicative deficits” in autism are often just the result of cross-neurotype interaction.
For those who want to learn more about autistic communication styles, I’ve compiled several studies that I’m going summarize.
Hopefully this will teach you a thing or two.
“Autistic peer-to-peer information transfer is highly effective” (2020)
Demonstrates that while NTs and autistics often experience communication breakdown, autistic people can convey and transfer information effectively among ourselves.
Autistic people (generally) prefer to interact with other autistic people, and experience a greater feeling of connection with each other as compared to NTs. So, we’re capable of establishing social rapport.