Yesterday I made a thread about how the caricature of autistic body language in Sia’s movie is harmful.
Some autistic people said the scenes made them feel ashamed of their own body language.
So I want you to see a few photos of me, and know that I’m not ashamed.
Here’s a photo of me when I was 8 years old. I had an overbite and I would often put my front teeth over my bottom lip as a stim. This is a characteristic that was mimicked in Sia’s movie.
I still put my teeth over my lip.
Here’s another photo of me around the same time period. On a hike with my family, I started flapping my hands while we sat down for a water break.
I still flap my hands.
In this photo I’m plugging my ears as a train rolls in, because the high-pitched squeaking and rumbling was overwhelming.
I still cover my ears at loud noises.
Here’s a photo of me when I was around 2 years old, stimming with my hands.
I still stim with my hands.
Here’s a photo of me much more recently (17 years old), sitting in an unusual position on a couch next to my grandmother.
I frequently sit like this.
Here’s a photo of me around a year ago, jumping up and down while flapping.
I’ve done this stim my whole life.
Here’s another photo of me doing full body stims, in my dorm room at college.
I still do this, every day.
I am showing you all these photos of me because I want you to know that you’re not alone.
The body language that was caricatured in Sia’s movie, is my body language too.
And it’s nothing that we need to be ashamed of. I’m actually quite happy to be visibly autistic.
Stimming is an act of rebellion in a world where people mock us for being ourselves, and tell us to have “quiet hands.”
Not all autistic people move in the ways I do. But those of us who do move in these ways are heavily stigmatized.
I don’t accept that stigma.
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It’s a neutral, descriptive term that is very much preferred by autistic people ourselves.
Much like Deaf people and Blind people, the majority of Autistic people want to be called “autistic person,” not “person with autism.”
So it was endlessly frustrating to me when, in my reading assignment for my “Issues Affecting Persons with Disabilities” class, the word “autistic” got put in the same category as the r-word.
There were a lot of other really bizarre and questionable things in that reading, too.
For one thing, the list of “words not to say” included the phrase “differently abled.” But then directly after that chart, this header was used:
If you’re new to the autistic community, you might not know what the acronym AAC stands for.
AAC means “Augmentative and Alternative Communication.”
Augmentative = a supplement to spoken communication
Alternative = the method doesn’t require speaking to communicate
AAC is a very broad category of communication methods that don’t require speech.
AAC is used by many autistic people who can’t speak, have unreliable speech, or find it easier to communicate without speaking.
And it’s used by many other disabled people as well.
Some examples of AAC include communication apps for smartphones or iPads, electronic keyboards, sign language, symbol-based systems, pen & paper writing, etc.
A lot of people use the word “AAC” just to refer to communication apps, but that’s only one type of AAC.
This isn’t about autism, which is the usual topic on this page. But I have this platform and I intend to use it for good.
If you’re following what’s happening on Wall Street & you’re worried about the subreddit and Discord server being shut down, I have 1 word for you: Mastodon
Mastodon is a decentralized, open-source social media platform.
There are no corporate owners.
You won’t have your whole operation shut down because you’re challenging the power of billionaires.
Anyone can create an “instance.”
It seems like the perfect place to continue.
What we’re all witnessing right now is an extremely historic moment.
Working class people who know how the system works are acting in solidarity with each other to redistribute wealth.
It’s important that the people who are doing this don’t lose the ability to communicate.