The gay men of Edinburgh in the late 80s taught me some of the most important lessons I ever learned.

*Patients often know more than their Drs
*There are times when we need to accept we don’t have the answers
*One of the most important things we do is to treat people equally.
Those lovely men. They came to our clinic with reams of paper from Daisy Wheel printers, all taken from this thing called the “Internet”...

You won’t have heard of it yet, but it’s going to be big...

They weren’t wrong!
They asked me about new retroviral therapies that were being tried out in the US.

I didn’t know the answers, but I asked our (wonderful) consultant and we made a plan together. Patient, Dr, specialist. A trio.

And so we moved, from AZT to other therapies, over time.
I also learned some of the relevance of “complementary” therapies.

We couldn’t cure the folk with HIV, but we could make their lives better. With new sensations, smells & experiences. Aromatherapy made us all feel better, at least it made us feel better about what was happening.
Of course, the other big cohort of patients were the ones taken straight off the set of “Trainspotting”.

I had had a pretty protected upbringing. So my “choices” had all been “good” ones.

My eyes were opened to how other people had more problematic starts to their lives...
I learned some big lessons about how medicine is so much more complex than just about the blood results and the tablets we give out.

I was already aware of the “social determinants of health”, but suddenly it all became very real indeed...
Maybe my naivety was sometimes helpful?

I became very fond of many of these patients. I learned that trust was a complicated & 2 (or more) way concept.

I also learned not to be shocked! A useful skill for the rest of life.

The things people told me about were: *interesting*!
Our consultants were brilliant. They were so supportive, both of the patients, but also the junior staff...

They also *knew* their patients really well. Which was quite impressive, when other senior staff couldn’t recognise the difference between a patient & a bar of soap!
The example was set for me of partnership working.

For the gay men, it was because of their high knowledge levels.

For the IV drug users, it was because if you didn’t have some kind of trust, you might as well be pouring your treatment down the sink!
And they gave people second chances... and third and fourth chances...

How good is that? These patients could mess up, but still those doctors were there for them. Come what may...

Makes me a bit teary, thinking about it, all these years later. I didn’t realise it was unusual.
So here I am, decades later, working as a geriatrician in a mixed setting, community & hospital. I don’t see many HIV patients, nor IV drug users.

But I remember those lovely people I met, back in 1989. And the life lessons they taught me.

#ItsNiceToBeNice
#TryIt
#ItsASin

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More from @Trisha_the_doc

21 Apr 20
How did we end up in this situation, with the care homes so vulnerable and unsupported?

It’s worth remembering some of the history here. I started my training in Geriatric Medicine back in 1992 and there were some pretty major changes happening around then...
I’m going to quote some stuff from @TheKingsFund - I hope I get it right, but very happy to be challenged...
There was a revolution in service provision as a result of the 1989 White Paper, Caring for People, (enacted in the 1990 Community Care Act) which declared that local authorities should be the brokers and care managers of social care, but not necessarily the direct providers.
Read 27 tweets
2 Dec 19
A few comments:
1. Having a mobile phone these days is not incompatible with grinding poverty.
2. Relationship breakdowns happen. Unpredictably.
3. Getting a job when you have childcare responsibilities is hard, even if the kids are at school some of the time.
#Dispatches
Moreover:
4. Mental health issues aren’t always easily visible or obvious.
5. People in poverty may have a pet. It may be the only thing motivating them to keep going.
6. Many of us could live on a budget for a short time. But not 365 days a year.

#Dispatches
Also:
7. Lack of hope is paralysing, and makes it impossible to live further than day to day.
8. It’s hard to lift yourself out of this situation in current system. Work can end up making you worse off.
9. Maslow’s hierarchy applies. Hard to plan when cold/hungry.

#Dispatches
Read 4 tweets

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