And this is why disabled people who DON'T want to die are often murdered: because people think that killing people with high support needs, or people who are simply old and frail-looking is the 'decent' thing to do.
The 'right' to kill disabled people is too seldom discussed in the context of disabled people's right to choose proper support and care without being made to feel like a burden. notdeadyet.org
Elderly and disabled people are treated so badly by society and institutions as a whole that many nondisabled people say outright that they'd rather be dead than disabled, BUT THEY DON'T EVEN THINK ABOUT WORKING TO CHANGE SOCIETY'S MINDSET OR SYSTEMS.
Here you go: the words of nonspeaking autistic teenager Zekwande Mathenjwa from Pretoria: "I am happy to be alive".
Do you think it's 'sweet' or 'inspirational' that this disabled boy is happy to be alive 'in spite of his disability' or is he allowed to be happy to be alive as he is, and permitted to love himself fully, autism and all? Because that's kinda a key question here.
If you think there's always a person 'behind' the disability ("I see you, not your disability"), you may have a hard time accepting the idea of allowing life to those for whom the disability actually is an inextricable part of who they are.
Many people conceptualise heaven as a place where people get new bodies. They talk about how disabled people will be free from their disabilities. Somehow, they imagine that these new bodies will be quite similar to one another.
So let's look at mainstream society's typical mental picture of a disabled person, viz. a wheelchair user. Wheelchair users are actually ENABLED by their wheelchairs and DISABLED by wobbly pavements, a lack of ramps, and everything being placed too high. And so on.
So now imagine we all die and get similar bodies in heaven. How about we all get easily retractible wings for fast mobility, and for regular mobility, nobody has legs, we all get built-in wheels, and the pavements of gold are smooth, but still with sufficient grip?
I could add autism, short stature, blindness and chronic illness to the mix, and we'll run into problems with this standard new-bodies-in-heaven thing. I mean, what would the size range be? Everyone would be healthy, of course, so could you weigh, say, 700 kg? Or be 5 cm tall?
Is heaven a place where pain stops, mobility is easy, and everyone understands and accepts you BECAUSE YOU ARE A BLONDE, BLUE-EYED CURLY-HAIRED CHERUB?
Because we're there, actually.
What do people ON EARTH have to be, to be accepted?
Why aren't we doing the acceptance part now already, before people die?
Because we're dealing with the idea that heaven is a place where everyone BECOMES ACCEPTABLE based on our own socially imposed criteria of acceptability.
So, society feeds us this idea that in order to be kind to people, we need to dispatch them to the place where social norms remain basically the same, but they magically get bodies that conform to those norms, and that's why it's nice up there.
It's all about the glorification of sameness and the paradoxical simultaneous admiration for certain exceptions. theatlantic.com/business/archi…
Ironically, we're not even talking about the majority of people being nasty to the minority of people who are different from them. Because MOST people in the world don't conform to the kyriarchical ideal of being a rich, white, nondisabled man. ballastexistenz.wordpress.com/2016/05/01/the…
If this is not just about the majority being mean to the minority, then what IS it about? It's about the unquestioning acceptance of some sort of ideal by the majority, and that majority being mostly prepared to impose that arbitrary ideal even upon themselves.
You can be a reform-minded ABA therapist; it makes no difference. You can't reform abuse. Protest at the symposium. Protest online and in person. Have placards. Write to legislators. See if you get to keep your job. The compliance industry doesn't take kindly to noncompliance.
If you're a BCBA or RBT and you treat children in ways that nonspeaking autistic people say works well for them, giving respect, you won't be filling in your worksheets anymore. And your job is all about those scores and stats. You stop that, they fire you. So you comply.
How do you reform the industry from the inside if doing the right thing must always secret and unnoticed?
They won't fire you for torturing children with electricity, but you can lose your licence if you call the organisation out too loudly for promoting torture.
"When you are a king, the forces of the universe will protect your mourners against COVID-19, so the rules about numbers of people at funerals don't apply to your funeral. You can have several thousand people there as long as they have masks and sanitise."
"Also, the virologists and immunologists can have an opinion on how disease spreads, but politicians hsve the final say on that. So obviously we need more politicians and fewer scientists, and then we'll all be healthier."
"Also, while we're here, I just want to remind you that John Pombe Magufuli died of a heart problem in Dar es Salaam, not of COVID-19 in Nairobi; and he was fine and working hard the weeks before when nobody heard from him."
I'm not available to review your masters thesis or your book on autism. I appreciate that you ask, but I don't have time. Depending on your topic, I can recommend a number of qualified autistic reviewers with a broad range of experience who you can hire for this type of work.
I'm also not available to counsel/support you or your friend/family member personally, even informally, because this requires commitment and I can't commit to more people than I am serving already. I also can't always connect you to another suitable individual. However...
Have you noticed that autism industry professionals who say that their favourite autistic writers are Temple Grandin and Carly Fleischmann usually haven't read anything written by any other autistic people, and even those two were several years ago?
"But I've learned soooo much from working with people with autism!"
"Like what?"
"Like patience!"
🙄 "What have you learned from autistic people about dealing with the body-mind disconnect? And autistic burnout?"
"I haven't heard of that."
Dear Autism Industry Overdogs
There's something different about learning from a position of power compared to learning along with equals, or subordinating yourself to someone's tutelage. Most of you people have a LOT to learn.
Dear #ActuallyAutistic activist friends: I know that many of you have been through a rougher than usual time in the advocacy space these past two months. I have several bits of encouraging news to share that I think will give you hope for your own efforts.
But I am exhausted now, so I will not share anything specific today.
Just know that changes can come.
My good trouble is slowly paying off. My friends are brewing a revolution and we see its effects around us.
Some of our big dreams are possible and realistic.
Hebrews 11:1 says that faith is being sure of what we hope for and certain of what we do not see.
I don't have faith. 😝 I am certain of nothing.
What I do have, is hope. For me, hope is seeing a logical possibility.