Today is the first day of #AutismAcceptanceWeek, so I have a request for everyone who interacts with autistic people (particularly nonspeaking autistic people):
Don’t talk about us while we’re right in front of you as if we’re not there, and don’t infantilize us.
I used to volunteer at a school for disabled people, and we had a lot of autistic students.
Almost all of the teachers would talk to each other about the students, and even complain about them, while they were right there in the same room.
It was so viscerally wrong.
I knew for a fact that the students understood what was being said about them. I watched as their facial expressions and body language changed.
But the teachers didn’t really seem to notice or care.
I was afraid to tell them to stop, in case it would cause me to lose my job.
Today I asked our nonspeaking autistic followers on Instagram if they’ve ever been spoken about as if they aren’t there, and how it made them feel.
Here are some of the responses:
“[I felt] like I didn’t matter. Like I was less of a person. Like something was wrong with me.”
“People used to think that because I didn’t talk it meant I didn’t understand them.”
“Made me feel not human, and not important.”
“It made me feel like I don’t have a option to communicate or they think I’m not capable I felt sad.”
“Painful.”
“Yep, it’s crushing. Like hey, I’m alive... not a doll, dammit. Stop treating me like an accessory.”
“Being invisible made me feel lonely, angry, and VERY insulted.”
“It’s the worst. My dad used to call me ‘it’ as a joke when he talked about me in front of me.”
“I was nonverbal from ages 5-11 and people talked about me like an animal in the room.”
“It felt like I was less than a person in their eyes and like I don’t understand what they’re saying.”
“Made me feel as if I literally wasn’t real sometimes.”
“It’s honestly the worst feeling ever and made me feel like I didn’t exist.”
“It made me feel like shit, like I wasn’t even a proper person with thoughts.”
“It is soul crushing and dehumanizing.”
“It made me feel like I was a thing rather than a person.”
“It’s really irritating and makes me feel like some kind of object or pet that can’t communicate for itself, but I can.”
“I felt like I was treated like a piece of furniture and not a person.”
“I felt like a dog.”
“It’s super discomforting and lonely.”
“My caregiver has to correct them and tell them to talk to me and listen to my AAC.”
“I was talked about like an inanimate object/essentially compared to the family dogs by the extended family.”
..
So: talk to nonspeaking autistic people the same way you’d talk to anyone else!
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I have made so many posts about the fact that most autistic people prefer identity-first language, but a lot of non-autistic people still leave comments like this when I use the word “autistic” in my writing:
“*People who have autism. Person first language is important 🙃”
Comments on our Instagram page are limited to people who follow us (to limit abuse and ableism).
So, whoever commented this ostensibly considers themselves an ally to autistic people.
But they are still acting in a way that betrays their arrogance in this space.
I’m not going to explain why people should use identity-first language for the 100th time (you can just go to identityfirstautistic.org).
Instead, I’m going to explain why it’s totally inappropriate for anyone to “correct” an autistic person on this issue.
April is just a week away, which means autistic people everywhere are bracing ourselves for what is known in non-autistic circles as “Autism Awareness Month.”
Here are some things you should know before all of that starts, and misinformation/propaganda start being spread:
1. Autism Speaks (AS or A$) is a corporate, eugenicist group that has done immense harm to autistic people.
They are widely viewed as a hate group by autistic people.
Do not give them your money, no matter how convincing you think their rebranding is. It’s all fake.
2. Autism is not a disease or a tragedy.
It’s a lifelong, genetic developmental disability. And it is also one of many ways of being in this world.
A$ and similar groups will try to profit by manufacturing fear and grief. Don’t fall for their lies.
Hi everyone, I’ve received a lot of feedback on the thread I made the other day with the story about Liza.
I want to apologize to anyone who was upset by it.
A lot of people have been asking for clarification on what I meant, so that’s what I’m going to do here.
I actually agree with all of the critique that the thread received.
There was nothing I read from an autistic respondent to the thread that I thought was untrue.
A lot of people were just responding to things that I wasn’t trying to say. (Hence why I agree with them)
The main issues arose from the fact that Twitter has a strict character limit, and the fact that I hadn’t fully considered how everything I said might be perceived.
I didn’t know what to clarify until people asked, basically.