I have made so many posts about the fact that most autistic people prefer identity-first language, but a lot of non-autistic people still leave comments like this when I use the word “autistic” in my writing:
“*People who have autism. Person first language is important 🙃”
Comments on our Instagram page are limited to people who follow us (to limit abuse and ableism).
So, whoever commented this ostensibly considers themselves an ally to autistic people.
But they are still acting in a way that betrays their arrogance in this space.
I’m not going to explain why people should use identity-first language for the 100th time (you can just go to identityfirstautistic.org).
Instead, I’m going to explain why it’s totally inappropriate for anyone to “correct” an autistic person on this issue.
Even if identity-first language was preferred by the minority of autistic people, let’s say only 10%, it still wouldn’t be okay to tell anyone how to refer to themselves.
The words used to describe autism are things that can only be decided by autistic people.
Autism is a part of OUR identity, not anyone else’s.
We are the only true authority on ourselves.
Nobody has the right to dictate to members of a marginalized group, what language they’re allowed & “not allowed” to use to describe their reality.
If you’re not autistic, you have no say on this issue. Your opinion quite literally does not matter.
Autistic people are perfectly capable of deciding amongst ourselves.
Our consensus is: default to identity-first language unless instructed not to by the person in question.
At the end of the day, it doesn’t even matter that there are dozens of other very important reasons not to correct someone who’s using identity-first language.
The most important reason not to correct an autistic person who says the word “autistic,” is that they’re autistic!
This is applicable to a lot of other issues and a lot of other minority groups.
People outside the group are always trying to tell us who we should be, how we should act, what language to use, how to identify, etc.
That’s not okay. We have the right to self-determination.
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Today is the first day of #AutismAcceptanceWeek, so I have a request for everyone who interacts with autistic people (particularly nonspeaking autistic people):
Don’t talk about us while we’re right in front of you as if we’re not there, and don’t infantilize us.
I used to volunteer at a school for disabled people, and we had a lot of autistic students.
Almost all of the teachers would talk to each other about the students, and even complain about them, while they were right there in the same room.
It was so viscerally wrong.
I knew for a fact that the students understood what was being said about them. I watched as their facial expressions and body language changed.
But the teachers didn’t really seem to notice or care.
I was afraid to tell them to stop, in case it would cause me to lose my job.
April is just a week away, which means autistic people everywhere are bracing ourselves for what is known in non-autistic circles as “Autism Awareness Month.”
Here are some things you should know before all of that starts, and misinformation/propaganda start being spread:
1. Autism Speaks (AS or A$) is a corporate, eugenicist group that has done immense harm to autistic people.
They are widely viewed as a hate group by autistic people.
Do not give them your money, no matter how convincing you think their rebranding is. It’s all fake.
2. Autism is not a disease or a tragedy.
It’s a lifelong, genetic developmental disability. And it is also one of many ways of being in this world.
A$ and similar groups will try to profit by manufacturing fear and grief. Don’t fall for their lies.
Hi everyone, I’ve received a lot of feedback on the thread I made the other day with the story about Liza.
I want to apologize to anyone who was upset by it.
A lot of people have been asking for clarification on what I meant, so that’s what I’m going to do here.
I actually agree with all of the critique that the thread received.
There was nothing I read from an autistic respondent to the thread that I thought was untrue.
A lot of people were just responding to things that I wasn’t trying to say. (Hence why I agree with them)
The main issues arose from the fact that Twitter has a strict character limit, and the fact that I hadn’t fully considered how everything I said might be perceived.
I didn’t know what to clarify until people asked, basically.