The sadly recently deceased Ian Gibson MP was a great #MECFS champion.
I revisited the recommendations of the famous “Gibson report” of MPs & Lords of 2006. This thread is some of the startling quotes from that, with so much inacted upon, still in urgent need today:
1)
I revisited the recommendations of the famous “Gibson report” of MPs & Lords of 2006. This thread is some of the startling quotes from that, with so much inacted upon, still in urgent need today:
1)
Areas for Further Examination
1. Is this one disease or two – CFS/ME or CFS & authentic ME? Is there a clear distinction or is it a spectrum? Large-scale epidemiological studies ... will help delineate subsets of patients
1. Is this one disease or two – CFS/ME or CFS & authentic ME? Is there a clear distinction or is it a spectrum? Large-scale epidemiological studies ... will help delineate subsets of patients
2.Why does the DOH not keep or collect data pertaining to the number of CFS/ME sufferers in the UK?...
3.No representative who appeared at the Oral Hearings proposed CFS/ME was entirely psychosocial. So why has this model taken such a prominent role in the UK?
3.No representative who appeared at the Oral Hearings proposed CFS/ME was entirely psychosocial. So why has this model taken such a prominent role in the UK?
4. The Research areas defined by the CMO Report in 2002 have not been addressed. Further research is the single most important area in this field.
5.There is a need for diagnostic tests but this is likely to be dependent on a greater understanding of possible causes.
5.There is a need for diagnostic tests but this is likely to be dependent on a greater understanding of possible causes.
6. There is a need to undertake further research of postviral infective cause in carefully controlled studies.
7. The evidence for a toxin aetiology requires critical & controlled studies. This includes research into possible causes, like pesticides.
7. The evidence for a toxin aetiology requires critical & controlled studies. This includes research into possible causes, like pesticides.
9.
***Much more study should be centred on the reasons why some individuals are susceptible to developing the illness or illnesses. These include further follow-up of immunological, endocrinological and neurological disturbances***
HIGHLIGHTING AS RELEVANT TO LONGCOVID DISASTER
***Much more study should be centred on the reasons why some individuals are susceptible to developing the illness or illnesses. These include further follow-up of immunological, endocrinological and neurological disturbances***
HIGHLIGHTING AS RELEVANT TO LONGCOVID DISASTER
12. The MRC should call for research into this field recognising the need for a wide ranging profile of research. The committee would like to see a similar arrangement to the AIDS programme funded previously by the MRC.
# the MRC claim they never help individual illness!
# the MRC claim they never help individual illness!
“The Immediate Future
The MRC... should assign at least an equivalent amount of funding (£11 million) to biomedical research as they have done to psychosocial research.”
#this was in 2006 & it’s odd it’s presented as a triumph that over the following 15 years we got about £6m
The MRC... should assign at least an equivalent amount of funding (£11 million) to biomedical research as they have done to psychosocial research.”
#this was in 2006 & it’s odd it’s presented as a triumph that over the following 15 years we got about £6m
“It can no longer be left in a state of flux & these [ME] patients ...should expect a resolution of the problems with only an intense research programme can help resolve. It is an illness whose time has certainly come”
Longcovid has what they were calling for, we still wait
Longcovid has what they were calling for, we still wait
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