32% of adults have adverse reactions to fragrance. If you care about making the world more accessible you can start by limiting or ending your use of scented products. That means no scented beauty products, laundry products, air fresheners, bathroom sprays, or scented cleansers.
Committing to being fragrance free is a healthy choice for you too! Fragrances are largely unregulated and are known to have carcinogens in them. google.com/amp/s/amp.theg…
Fragrances are also bad for the environment and are contribute to the release of VOCs into the air we breathe. google.com/amp/s/www.allu…
Going scent free, especially in public spaces, can make a huge difference to those around you. Under the ADA I'm guaranteed a scent free work space. But for that accommodation to be met, the people around me need to commit toy access needs.
It is very very hard to enforce this type of policy. Most people with this accommodation find it often neglected or find that colleagues outright refuse to follow it. And unfortunately, that means that many disabled people are forced out of the workforce.
Because our colleagues would rather smell like flowers than allow us to work beside them safely. So if you're committed to an accessible world, you can begin by throwing out harmful products which are contributing to environmental degradation and causing harmful health issues.
I understand that scents can be grounding and that there are competing access needs. I'm all for compromising (like no air fresheners or scented cleansers in the office and a private workspace that's scent free).
But even if you cut scented products in ONE of these categories, that expands access for me. Consumer trends guide the market. Refusal to buy scented products informs companies that we won't continue to support harmful products and expands the market for fragrance free shopping.
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Once I went to class while not feeling well bc of the attendance policy. We had to give presentations in this course on Lores and Legends. I tried to sit through a talk on the myths behind vampirism and got super sick. 1/4
Because I don't deal well with stories/images/narratives about blood after almost dying post brain surgery. I went into the hall for air, my prof yelled at me for leaving the room, and then I woke up in his arms after having passed out in the hallway. 2/4
After that my accommodations were met regarding flexible attendance. But it could all have been avoided. Promoting trigger warnings, allowing students alt assignments if they miss class, or allowing students to step out of the room during class would have kept me safer. 3/4
I was diagnosed with #EhlersDanlos and #ArnoldChiari in undergrad. The eds dx came the winter of sophomore year, and the Chiari dx the spring of senior year. I would have given anything to have disabled mentors through those years. 1/11
I care about disability representation in higher ed because I had to find my way into claiming a disabled identity. Alone. Because I didn't know what to read or who to reach out to or what to ask for. Representation leads to belonging. 2/11
In undergrad I had wonderful profs, some of whom privately disclosed medical issues, but none of whom were vocal and public about identifying as disabled. I didn't have a professor with mobility devices like I had. 3/11
If academia can't offer financial security, medical care, and benefits, it's not a real career track for disabled academics. I can't afford to move every year, change doctors every year, lose medical treatments every year. I'm not applying to any VAPs or adjunct positions. 1/5
I can't afford to keep neglecting my very real medical needs. I already did that for five years. I'm tired of unpaid labor that leads to dead ends. And I'm really tired of the general assumption that if you want to stay in you'll find a way. 2/5
I won't do it. I'll find something equally fulfilling that won't demand that I dig my own grave. And until we acknowledge that "staying in" and "staying competitive" are wildly ableist we won't have an equitable academy. 3/5
I wonder what it's like to go to the hospital knowing that you'll be listened to, treated as a rational adult, and provided care. Because as a disabled woman I can't trust the system I need to survive. I continue to face eugenics every single day. 1/4
And this pandemic has been a painful and traumatic reminder that there is no real push for change. There is no real push to protect disabled individuals. A year of sheltering had taught me that my regular medical needs will always be placed on the back burner in crisis. 2/4
It's taught me that I'll be blamed for any decline that happens in the span of time when I'm denied care. It's taught me that my quality of life doesn't really matter compared to that of someone who is nondisabled. 3/4
When I was 16 my first job was at McDonald's. Now I'm months away from defending my dissertation for my PhD. I've had many jobs in between - research assistant, archival assistant, editor, etc. The hardest work out of them all? That McDonalds job. 1/5
It was exhausting. The job was thankless. Customers were rude and made ridiculous assumptions about WHY people were working there. I have never run my body so ragged in a job. I have never been spoken down to, asked to do thankless work, or yelled at so much in any other job. 2/5
Increasing the minimum wage to $15 doesn't degrade the decade of education I've done. On the contrary, I deserved a wage that could support me back then as I saved for college. I was just as deserving of survival and social mobility then as I am now. 3/5
A lot of #EDS patients talk about developing high pain tolerance because of our frequent dislocations. I want to take a second to talk about the assumptions embedded in that phrase because it so often minimizes what were coping with. 1/8
I have severe allergies to most meds, I have no stable pain meds, I have bone pain from #MCAs, and I dislocate daily. I'm in a lot of pain all the time. And claiming I have "high tolerance" is a disservice to what I'm actually coping with. 2/8
I've learned not to cry, not to throw a fit, to keep working through the pain, because I've been told I need to my entire life. I grew up with Drs gaslighting my pain. I became a teen with doctors gaslighting my pain. I entered my 20s in the same way. 3/8