Autistic people’s sensory sensitivities are not “phobias.”

We are not “afraid” of loud noises, etc. for some irrational reason.

We become distressed by those things because they are causing us physical pain and overstimulation.

Let us wear ear defenders and earplugs!!
@AnnMemmott posted a thread today about a study (link.springer.com/article/10.100…) where an autistic boy’s auditory hypersensitivity was treated as though it was a phobia.

Very unsurprisingly, the “coping skill” he chose the most was the use of earplugs.

I wonder why? 🙄 /s
Autistic people are “afraid” of loud noises in the same way that everyone is “afraid” of falling face-first into a cactus.

It’s not hard to understand at all.

When we’re exposed to loud noises we experience significant distress, and then we exhibit signs of distress.
The boy in the study had an elevated heart rate and would self-injure and become aggressive towards others when exposed to loud, unpleasant noises.

Obviously, those behaviors indicate distress that would go away if the sound was mitigated by tools like earplugs or headphones.
Yet somehow this was not obvious to the authors of the study, who instead framed the boy’s understandable distress responses as “problem behavior” as a result of a “specific phobia” of sound.

It really baffles me how much willful ignorance there is in this paper.
Some “coping strategies” suggested by the therapists involved were squeezing a stress ball, drinking water, and looking at pleasant pictures.

But of course the ones the boy chose the most were access to earplugs, and singing a song (to block out some of the other noise).
This isn’t hard, people.

You don’t need to devote excessive amounts of time and money to writing studies like this.

Literally all you have to do is dip your toes into the writing of the autistic community.

With minimal effort you will learn about things that help us.
I wear ear defenders or earplugs (depends on which one is most easily available) when I’m exposed to loud noises.

This is not a form of “escape” that will prevent me from being desensitized to my “phobia.”

It’s the most sensible, helpful response to the situation.
It really irritates me how many baseless assumptions are made about autistic people in studies about us.

Non-autistic authors can just make stuff up without consulting autistic people on our experiences, and then that made-up stuff ends up in published papers.

It’s absurd.

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More from @autisticats

16 May
During AAPI Month, it’s important to listen to the voices of AAPI individuals. For example, me! I’m Abby, Eden’s girlfriend.

First, some background: My grandmother is Korean and my grandfather is Japanese. This makes me 1/4 Korean, 1/4 Japanese, and 1/2 French Canadian.
The beginning of this month has made me think a lot about my Asian identity, and how it intersects with my neurodivergent identity.

I have never felt truly “Asian,” for a number of reasons- like my mixed race, light hair and eyes, and the assimilation my ancestors went through.
However, there is conflict between the model minority stereotype and how I behave due to autism or ADHD.

The stereotypical Asian is quiet, compliant, well put together, good at math, likes spicy food, etc.

This is the “ideal Asian”- an identity that white people constructed.
Read 9 tweets
8 May
If you are someone who, like me, finds it difficult or impossible to speak when you’re overstimulated:

You don’t have to keep all of your thoughts in your head just because it’s “easier.”

You’re allowed to use AAC, sign language, text-to-speech apps, etc. In fact, you should.
Yesterday I went to the mall with Abby and two of our friends. I had forgotten how busy malls can be.

One of the shops we went to had colored strobe lights inside that I had to move & look away from. Others had loud music playing. There were people and bright lights everywhere.
These stimuli weren’t a very big deal to the people I was with, but they impacted me significantly.

I could feel myself withdrawing, and losing speech.

Without me having to ask, Abby knew I needed earplugs and gave them to me. I was very grateful.
Read 10 tweets
6 May
I’m doing a linguistic ethnography for my final paper in one of my classes this semester.

I’m going to be comparing autistic people’s speech when they’re talking to other autistic people, versus when they are talking to non-autistic people.
In order to accomplish this, I need autistic people who are 18 or older to email me recordings.

You should to collect two different recordings:

One of a conversation with another autistic person(s), and one with a non-autistic person(s).
You can stop each recording after 5 minutes. The recordings don’t need to be about any specific topic, and you don’t need to censor yourself (cursing is fine, etc.)

These should be natural conversations where you talk to the other person/people the way you normally would.
Read 9 tweets
5 May
In honor of AAPI Heritage Month, here are some Asian autistic people you should know about!

Lydia X.Z. Brown is a Chinese-American adoptee. They are heavily involved in disability justice work, and their writing on disability is foundational to the movement. Photo of Lydia X.Z. Brown, ...
Yuh-Line Niou is a Taiwanese-American politician who serves in the New York State Assembly.

She represents the 65th district, which includes Chinatown. She originally ran as a member of the Working Families Party, but she is currently in office as a Democrat. Photo of Yuh-Line Niou, a T...
Kodi Lee is a Korean-American musician and singer with perfect pitch, who recently won America’s Got Talent.

He is also blind (due to optic nerve hypoplasia) and has Addison’s Disease, which affects hormone production in the adrenal glands. Photo of Kodi Lee, a Korean...
Read 10 tweets
30 Apr
Something is happening that you need to know about.

The Judge Rotenberg Center in Massachusetts is still using painful electric shock devices to punish autistic & disabled people.

The devices were banned by the FDA last year, but then the ban was put on hold because of Covid.
The JRC practices a form of behaviorism called Applied Behavioral Analysis.

Electric shocks, solitary confinement, physical restraint, starvation, sleep deprivation, etc. are all tactics used by the JRC to “control” the behavior of developmentally disabled people.
Six disabled people have died at the JRC in the time since it was founded.

Residents have been restrained and shocked for things as minor as not taking off their jacket, accidentally wetting the bed, and rocking back and forth.

The center has been condemned by the UN.
Read 8 tweets
27 Apr
My longest-lasting friendships/relationships have been with people who communicate bluntly with me.

Autistic people’s communication style is often straightforward, and we can find it hard to maintain relationships with people who don’t return the favor of being an open book.
Dancing around feelings, dropping hints, avoiding conflict, keeping secrets, etc. are a recipe for disaster when trying to communicate with me.

Because I will keep asking about things and expecting a straight answer.

I can’t function without knowing exactly what’s going on.
Sometimes it can be hard for people to talk about certain feelings, etc. But just letting me know the basics saves everyone a lot of stress.

I think a lot of neurotypical people feel too vulnerable and exposed by that kind of bluntness.

But I thrive with it.
Read 9 tweets

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