If you are someone who, like me, finds it difficult or impossible to speak when you’re overstimulated:

You don’t have to keep all of your thoughts in your head just because it’s “easier.”

You’re allowed to use AAC, sign language, text-to-speech apps, etc. In fact, you should.
Yesterday I went to the mall with Abby and two of our friends. I had forgotten how busy malls can be.

One of the shops we went to had colored strobe lights inside that I had to move & look away from. Others had loud music playing. There were people and bright lights everywhere.
These stimuli weren’t a very big deal to the people I was with, but they impacted me significantly.

I could feel myself withdrawing, and losing speech.

Without me having to ask, Abby knew I needed earplugs and gave them to me. I was very grateful.
But despite having earplugs in, I was still overstimulated.

I wanted to say something funny to Abby, but when I realized that the words wouldn’t come out, I thought “Oh well, it wasn’t that important anyway.”

But then I thought, “Wait, I have AAC. Why not use it?”
Instead of being complacent with not expressing my thoughts (which is what I normally do), I decided I should use every tool available to communicate.

So I pulled out my phone, opened one of my AAC apps, and started typing the phrase I had been wanting to say.
That decision was probably a life-changing one, now that I think about it.

I’ve used my AAC before in shutdowns and meltdowns, but never just because I was feeling too overstimulated to talk (while being completely fine otherwise).

It felt incredibly liberating.
I shouldn’t be so comfortable with not expressing myself when I’m having a hard time with speech.

It can feel very isolating and sad at times, because I know that the people around me would like to hear what I have to say, if it were possible for me to speak.
I’ve gone through my whole life that way.

Becoming quiet when I’m overwhelmed, never really trying to break through the silence unless what I want to say is extremely important.

But yesterday I realized something: everything I want to say is important.
My friends care about me, they think I’m funny, they value my presence, and they want to know what I have to say.

Why should I deny them that? Why should I deny myself that opportunity for connection?

I shouldn’t. And yesterday, for the first time, I didn’t.
Everyone should use AAC if they need to. The more people who do so, the more normalized it becomes in our societies.

Not speaking is not the same as not having anything to say.

And if you have something to say, you should say it in whatever way you can.

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More from @autisticats

6 May
I’m doing a linguistic ethnography for my final paper in one of my classes this semester.

I’m going to be comparing autistic people’s speech when they’re talking to other autistic people, versus when they are talking to non-autistic people.
In order to accomplish this, I need autistic people who are 18 or older to email me recordings.

You should to collect two different recordings:

One of a conversation with another autistic person(s), and one with a non-autistic person(s).
You can stop each recording after 5 minutes. The recordings don’t need to be about any specific topic, and you don’t need to censor yourself (cursing is fine, etc.)

These should be natural conversations where you talk to the other person/people the way you normally would.
Read 9 tweets
5 May
In honor of AAPI Heritage Month, here are some Asian autistic people you should know about!

Lydia X.Z. Brown is a Chinese-American adoptee. They are heavily involved in disability justice work, and their writing on disability is foundational to the movement. Photo of Lydia X.Z. Brown, ...
Yuh-Line Niou is a Taiwanese-American politician who serves in the New York State Assembly.

She represents the 65th district, which includes Chinatown. She originally ran as a member of the Working Families Party, but she is currently in office as a Democrat. Photo of Yuh-Line Niou, a T...
Kodi Lee is a Korean-American musician and singer with perfect pitch, who recently won America’s Got Talent.

He is also blind (due to optic nerve hypoplasia) and has Addison’s Disease, which affects hormone production in the adrenal glands. Photo of Kodi Lee, a Korean...
Read 10 tweets
30 Apr
Something is happening that you need to know about.

The Judge Rotenberg Center in Massachusetts is still using painful electric shock devices to punish autistic & disabled people.

The devices were banned by the FDA last year, but then the ban was put on hold because of Covid.
The JRC practices a form of behaviorism called Applied Behavioral Analysis.

Electric shocks, solitary confinement, physical restraint, starvation, sleep deprivation, etc. are all tactics used by the JRC to “control” the behavior of developmentally disabled people.
Six disabled people have died at the JRC in the time since it was founded.

Residents have been restrained and shocked for things as minor as not taking off their jacket, accidentally wetting the bed, and rocking back and forth.

The center has been condemned by the UN.
Read 8 tweets
27 Apr
My longest-lasting friendships/relationships have been with people who communicate bluntly with me.

Autistic people’s communication style is often straightforward, and we can find it hard to maintain relationships with people who don’t return the favor of being an open book.
Dancing around feelings, dropping hints, avoiding conflict, keeping secrets, etc. are a recipe for disaster when trying to communicate with me.

Because I will keep asking about things and expecting a straight answer.

I can’t function without knowing exactly what’s going on.
Sometimes it can be hard for people to talk about certain feelings, etc. But just letting me know the basics saves everyone a lot of stress.

I think a lot of neurotypical people feel too vulnerable and exposed by that kind of bluntness.

But I thrive with it.
Read 9 tweets
26 Apr
I’ve been thinking about how mainstream “autism advocacy” groups operate differently than organizations like the United Spinal Association.

Autism Speaks et al. rely on fear and search for “causes & treatments” whereas United Spinal is disability rights & advocacy oriented.
When you search “autism foundation,” Autism Speaks is the first search result.

When you search “spinal cord injury foundation,” United Spinal Association is the first result.

I’m comparing the two because they are both disability-focused organizations. So, let’s look at them.
First, let’s look at United Spinal. Here’s their mission statement.

The majority of their members & leadership (including the CEO) have spinal cord injuries themselves- as you can see in the photo. Our Mission  United Spinal Association is a national 501(c)
Read 10 tweets
22 Apr
Yesterday I remembered that when I was around 6-7 years old, I learned how to make origami foxes in my art class at school.

Then, when I got home, I cut up a bunch of pieces of paper into squares, and then proceeded to make what ended up as over 200 foxes in just a few days.
They were all different sizes, but a substantial portion of them were smaller than a thumbtack.

I was meticulous, and the repetition of folding in the same pattern constantly didn’t bore me, it made me excited and happy.

I was so proud of how many there were.
That weekend, I scooped all of the foxes up and put them in a giant ziplock bag, then took them to church so I could give some away to people.

The congregants were astonished at my “patience” and “attention to detail.”

Looking back, this is such a classic autistic story.
Read 10 tweets

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