I teach the (Stanford) CPSMP.

Pain programs/rehab are immensely valuable. They provide support, learning, and critical experience.

But they are established in such a way as to be best suited to the funding model, not to the patient's needs. /1
If you've been out of commission for years, expectations need to be realistic & set up for success.

You're not going to go from virtually bedridden to a full week program just because that's what's demanded.

It's neither rational, medically reasonable, nor sustainable. /2
Program needs to start slowly. One or two afternoons a week, spaced apart, for a few hours. Grow over months.

This would work. Just not set to funding, they want programs that are shorter, more aggressive, and have quantifiable end data. /3
Nobody cares about realistic sustainability, in the best interests of the patients. Medical bootcamp rehab looks good on paper, but...

Establish programs that will work, not just look good.

How many people who take the program return to full pre-injury/illness activity? /4
Surprised if there were any. If there are, they weren't chronic or degenerative, just deconditioned and in need of support.

But for those in dire circumstances, a prolonged gradually increasing program over months would have the best sustainability & success.

They don't exist.

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More from @CanadaPain

23 May
This is our health care system in action:

This is the system with doctors and nurses and pharmacists, ‘caregivers’ all, who accuse us as being “drug-seeking” and “addicts”, when what we truly are is patients seeking relief from our chronic, degenerative, and terminal ....
/1
...medical conditions, relief from the torturous physical pain, injurious isolation, the cognitive decline of severe pain and sleep deprivation, and terrible mental suffering.
/2
This is the system with trained professionals who treat us like we’ve committed some sort of crime when we come seeking help.
Who misdiagnose us as having “OUD”, rather than genuine & terrible physical pain that impacts every aspect of our existence in complex & negative ways.
/3
Read 14 tweets
21 Apr
My 90 year old mother has crippling psoriatic arthritis, and CV disease.

She had a severe life-threatening bleed from 35yrs of NSAID's.

Her RA doc of 40 years then RX'd 3xTylenol 2's/day for pain. Codeine.

Her new doc refused to fill the script w no discussion or notice.
Mom, force-tapered off 3xT2's a day, no longer gets any sleep. She is more unsteady on her feet and at risk of falling because walking is too painful.

Her cognition firmly intact is starting to slip due to pain / sleep deprivation. She has increased cardio issues.
Mom's life, which she viewed as precious, is almost no longer worth living.

Tylenol 2 force-taper will help kill my mother.

Have mercy, Canada. Withdraw the 2017 Canadian Guidelines for opioids for chronic pain.
Read 4 tweets
25 Mar
Yes there are appropriate uses of oxy. Therapeutic RX of opioids for acute, urgent, and chronic care leads to dx of OUD in: 0.6% of the time. Yes, I said 0.6%.

My health care system discriminates, misdiagnosis, stigmatizes, shames, & med abandons me bc someone else misuses drugs
Torturous 18yrs in bed: undermed. & non-functional (wrong opioid); overmed. and non-functional (wrong opioid), and torturously refused pain mgt, leading to hosp as I became suicidal when med abandoned and was denied all pain tx. This is not addiction, weakness, or moral failing.
In '11, I found the doc who saved my life, Ellen Thompson. She RX'd the right opioid at the right dose (for me). I stabilized, and began to find life again, with gratitude. Between low dose oxy, 20 weekly NBI's, and a system that believed rather than destroyed me? I improved.
Read 11 tweets

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