This is our health care system in action:

This is the system with doctors and nurses and pharmacists, ‘caregivers’ all, who accuse us as being “drug-seeking” and “addicts”, when what we truly are is patients seeking relief from our chronic, degenerative, and terminal ....
/1
...medical conditions, relief from the torturous physical pain, injurious isolation, the cognitive decline of severe pain and sleep deprivation, and terrible mental suffering.
/2
This is the system with trained professionals who treat us like we’ve committed some sort of crime when we come seeking help.
Who misdiagnose us as having “OUD”, rather than genuine & terrible physical pain that impacts every aspect of our existence in complex & negative ways.
/3
This is the system that teaches us how it feels to be judged and shamed, stigmatized and disdained, who treat us with ridicule, even disgust, because of our complicated health needs. /4
This is the system whose health care professionals illegally discriminate against us because they don’t understand our medical conditions, the system that has brainwashed an entire population into believing that anyone who takes opioids is an addict...
/5
...and whose providers are afraid of the tyrannical system overseeing them, that causes them to fear for their licensing, their careers, the well-being of their families, their freedom, and therefore chooses to turn us away, rather than risking all.
/6
This is the system that drive us from the places we should be safe, where we go for help, only to be told there is no safety here, our file is “flagged”, and to never return.
/7
This is the system that drives us out of health care offices and hospitals and clinics, that send us home, tortured and broken by our own bodies, crushed physically, psychologically, and spiritually.
/8
This is the system that medically abandons us because we have myriad medical conditions that respond well to LT-OPT, and so we hope to find someone with heart and courage, who will help us find a way to be not pain free, but pain managed, so we can live this precious life.
/9
This is the system that crushes all Human Rights regarding access to compassionate care and medical treatment of pain, despite national and international law, the system that is void of humanity and care.
/10
This is the system that kills the most vulnerable:

Some of us slowly – with hypertension and CV crisis from untreated pain; some of us quickly – by forcing us to take medications that are so toxic they cause full systemic collapse in a few short years;...
/11
some of us accidentally – believing the "opioid crisis" lie & that to prescribe opioids is to do harm, leaving us to unbearable suffering and slow torturous deaths; & some of us with full knowledge and intent – driving us from safe places of care to street drugs and suicide. /12
Hear us now:
This is the plight of people living with disabling pain,
this is the system that kills us all.

And in time, without change, it will kill you too.
#PainKills #OpioidsSaveLives #SuicideByPain #ISD

/13
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More from @CanadaPain

22 May
I teach the (Stanford) CPSMP.

Pain programs/rehab are immensely valuable. They provide support, learning, and critical experience.

But they are established in such a way as to be best suited to the funding model, not to the patient's needs. /1
If you've been out of commission for years, expectations need to be realistic & set up for success.

You're not going to go from virtually bedridden to a full week program just because that's what's demanded.

It's neither rational, medically reasonable, nor sustainable. /2
Program needs to start slowly. One or two afternoons a week, spaced apart, for a few hours. Grow over months.

This would work. Just not set to funding, they want programs that are shorter, more aggressive, and have quantifiable end data. /3
Read 5 tweets
21 Apr
My 90 year old mother has crippling psoriatic arthritis, and CV disease.

She had a severe life-threatening bleed from 35yrs of NSAID's.

Her RA doc of 40 years then RX'd 3xTylenol 2's/day for pain. Codeine.

Her new doc refused to fill the script w no discussion or notice.
Mom, force-tapered off 3xT2's a day, no longer gets any sleep. She is more unsteady on her feet and at risk of falling because walking is too painful.

Her cognition firmly intact is starting to slip due to pain / sleep deprivation. She has increased cardio issues.
Mom's life, which she viewed as precious, is almost no longer worth living.

Tylenol 2 force-taper will help kill my mother.

Have mercy, Canada. Withdraw the 2017 Canadian Guidelines for opioids for chronic pain.
Read 4 tweets
25 Mar
Yes there are appropriate uses of oxy. Therapeutic RX of opioids for acute, urgent, and chronic care leads to dx of OUD in: 0.6% of the time. Yes, I said 0.6%.

My health care system discriminates, misdiagnosis, stigmatizes, shames, & med abandons me bc someone else misuses drugs
Torturous 18yrs in bed: undermed. & non-functional (wrong opioid); overmed. and non-functional (wrong opioid), and torturously refused pain mgt, leading to hosp as I became suicidal when med abandoned and was denied all pain tx. This is not addiction, weakness, or moral failing.
In '11, I found the doc who saved my life, Ellen Thompson. She RX'd the right opioid at the right dose (for me). I stabilized, and began to find life again, with gratitude. Between low dose oxy, 20 weekly NBI's, and a system that believed rather than destroyed me? I improved.
Read 11 tweets

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