not for the first time, I have Some Notes about cervical spine design
I try not to think about my cervical spine at all*, but whenever I do think about it I imagine an extremely spiky and unstable tunnel in which my spine worm is fighting to thrive.
*because if I think about it in any kind of detail I trigger a vasovagal episode. haunted, etc.
also at this point I assume the vasovagal response to *thinking about spinal anatomy* is a feature, not a bug.
you know, like of course the perilous tunnel that all life depends on has an unsettling security system to prevent me even *thinking* about it. of course it does.
anyway, I was kind of raised to believe that I was disappointing people if I made concessions to the perilous tunnel. mind over matter, etc. early x-rays showed no Real Problems.
and now I realize that my #1 job is to like... protect that spine worm at all times? p inconvenient.
[vaccine talk]
anyway I am forced resting today because my neck is grumpy after all that post-vax immune activity and like what the fuck, neck. why are you like this.
(it's like this because hypermobility & stenosis)
• • •
Missing some Tweet in this thread? You can try to
force a refresh
This is definitely a must-read for all disability & healthcare advocates!
(especially if you’ve been comparing long covid to polio without acknowledging the decades of dismissal faced by ME patients & advocates who could see this mass gaslighting coming)
“The average time to an MUS diagnosis for a patient presenting with new symptoms was 4 minutes & 25 seconds—and the median time, which is more representative because it eliminates the effect of outliers, was 1 minute & 47 seconds.”
💯💯💯
“The failure of that system forces patients with complex medical conditions into the welcoming arms of charlatans whose main virtue is the time they spend listening.”
do you ever think about how it's easy to screen yourself for POTS, and yet somehow an unfathomable number of doctors won't recognize the diagnosis unless you've been literally tortured on a tilt table and then they reveal to you that your main treatment options are SALT & WATER?!
(yes, with many caveats about how not all dysautonomia is POTS and also that there are some prescription treatment options)
everything about this last year has been so incredibly hard for so many people, including those of us with underdiagnosed & undertreated chronic illness.
and somehow it's like each new phase unlocks a chorus of new & distinct ableist dog whistles in media?
like at the beginning there was the thing where everyone acted like we were exaggerating the threat we faced. ugh.
and we've been missing from all risk assessments & plans, of course, because in all official sense we are Presumed Healthy, Despite Evidence To The Contrary. UGH.
and anyway I'm just thinking about how sometimes in order to survive with chronic illness you just... keep accepting that you've been let down by all these different people who were supposed to help you when you're sick. doctors & friends & family & colleagues.
The shit we get told for needing a lot of sick days is inexcusable.
I always thought the point of taking sick days was to avoid needing sick days in the future. which is a very specific kind of chronic illness logic, and I don't know how widespread it is.
Really interesting how many people interpreted this as mindfulness bashing.
This was about how I (and many other people) literally do not have the tools to interpret the signals our bodies are sending us until we've done years of research.
If you have suspected or confirmed mast cell problems, what have been the most unexpected early warning signs that it's Time To Take A Benadryl*?
*or other rescue med, etc
I have flushing episodes that are pretty standard, but I definitely also have SUDDEN COGNITIVE & FULL BODY EXHAUSTION (affectionately known as bee brain because my brain uh, feels full of bees) that I am always thrown off by.
"Why do I suddenly need a nap?! Oh. Need benadryl."
One of the strangest discoveries of this crash is that bee brain is not inherently part of my fatigue.
When I unwittingly lived in toxic mold in 2017, I thought that feeling was just part of being exhausted?
I've still had cog fatigue this year, but it's much less... something.