Tell me how you’ll use my medical data. Only then might I sign up | Kenan Malik |
“Would you allow your medical data to be anonymised and used for research into cancer or to aid future pandemic planning? Most people would probably say yes.”
“I certainly would. But what if that data could be accessed by tech giants such as Google, medical corporations such as Babylon Health, security firms such as Palantir, or coercive state institutions like the police or immigration service? That raises a few red flags.
And
“What if that anonymised data could in fact help pinpoint who you are? Now you’re getting me worried.”
That is the dilemma most of face. We want to do good and also help one another.
Patients have until June 23 to opt out by filling in a form & TAKING IT TO THEIR GP for themselves, & their children, before their historical records become a permanent and irreversible part of the new data set. ft.com/content/a13225…
It looks to me, from the form itself, that this CANNOT BE FILED ON LINE OR THROUGH THE NHS app. @EinsteinsAttic or @PrivacyMatters can correct me if I am wrong
It has to be completed & handed in to your GP
What about email?
I don’t know how they can verify signatures re email.
If you’ve done it online or through the NHS App I think you’ve gone for the wrong opt out.
A great example of how appallingly badly this is being handled
Too many do not even know the right form to use
GP surgeries are sending out the wrong form when someone sends the right one
Could @AnnaSophieGross explain which Gov official suggested we were doing 25 mill LFT a week?
They certainly are not appearing on the Gov Covid dashboard. They only provide data for England but it is highly unlikely NI, Scotland & Wales combined = England.
Might also be right on scope for the @FT to do an article on John Bell’s (& other advisors) financial interests & directorships in genomics and testing given such huge sums of Gov money are going into a not hugely reliable test.
PHE frantically spinning the schools data as Delta cases rise EXPONENTIALLY driven by school age children and now moving into the older age groups, esp parent age groups.