@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust Henderson’s study on Acyclovir and adolescence with #MECFS showing benefit pubmed.ncbi.nlm.nih.gov/24445302/
@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust 2002 study by Lener showing improved left ventricular function in #MECFS with acyclovir by other it’s brand name . Not sure how brands differ pubmed.ncbi.nlm.nih.gov/12582420/
@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust This give summary of Leners papers 2001 , 2002 , 2007 including replicated clinical data of ten years and 7000 patient visits

phoenixrising.me/myalgic-enceph… Image
@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust He also has 2004 & 2008 paper

“1993 paper cinched the T-wave problem & documented what he called ‘subtle cardiac dysfunction’that showed up response to normal everyday tasks. 1997 paper he proclaimed that “CFS is a persistent nonpermissive herpes virus infection of the heart“
@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust In 2007 NICE guideline they included only Leners 2001 study . This time nothing nor Henderson’s study . They have also not recommended any pharmacological or supplements . Not sure if antidepressants recommended again based on opinion not research #MECFS
@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust “Dr. Lerner stated when his patients get well they tend to stay well. About 30% of them get up to 8 or 9 on EIPS Scale & stay there. There’s another group there needs some ongoing viral suppression. He noted that he was on Valtrex for six years is now off them entirely.” #mecfs
@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust #MECFS patients were treated with valacyclovir (14.3 mg/kg q6h) for ≥12 months. Each patient improved, based upon the Functional Activity Appraisal:“ Diagnostic panel to identify EBV subset (2012 ) journals.plos.org/plosone/articl…
@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust This looks like it has most of the links to his studies healthrising.org/chronic-fatigu…
@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust This is the 2001 study by Lerner that NICE included in 2007 guideline evidence review , but excluded form the update evidence review . 2004 study looks like RCT aswell . None included or Henderson’s study . academic.oup.com/cid/article/32…
@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust Another study on long standing fatigue that I haven’t seen mentioned elsewhere pubmed.ncbi.nlm.nih.gov/17276366/
@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust Italian study found antiviral a/immunoglobulin most beneficial when compared to other treatments pubmed.ncbi.nlm.nih.gov/24254550/

• • •

Missing some Tweet in this thread? You can try to force a refresh
 

Keep Current with Patient Consent

Patient Consent Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @consent_patient

11 Jun
Lerner on abnormal cardiac T waves in journal.chestnet.org/article/S0012-…. #MECFS #KidswithME
Lerner discovered with increasing work loads gross left ventricular dysfunction occurred. Fatigue of patients #MECFS may be related to subtle cardiac dysfunction occurring at work loads common to ordinary living. “ & that cardiac left ventricular function improved with acyclovir
A summary of the cardiac dysfunction in #MECFS identified in the research and clinical practice of Dr Lerner massmecfs.org/more-resources…
Read 5 tweets

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Too expensive? Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal Become our Patreon

Thank you for your support!

Follow Us on Twitter!

:(