Thread by @consent_patient

@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust Henderson’s study on Acyclovir and adolescence with #MECFS showing benefit pubmed.ncbi.nlm.nih.gov/24445302/

@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust 2002 study by Lener showing improved left ventricular function in #MECFS with acyclovir by other it’s brand name . Not sure how brands differ pubmed.ncbi.nlm.nih.gov/12582420/

@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust This give summary of Leners papers 2001 , 2002 , 2007 including replicated clinical data of ten years and 7000 patient visits

phoenixrising.me/myalgic-enceph…

@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust He also has 2004 & 2008 paper

“1993 paper cinched the T-wave problem & documented what he called ‘subtle cardiac dysfunction’that showed up response to normal everyday tasks. 1997 paper he proclaimed that “CFS is a persistent nonpermissive herpes virus infection of the heart“

@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust In 2007 NICE guideline they included only Leners 2001 study . This time nothing nor Henderson’s study . They have also not recommended any pharmacological or supplements . Not sure if antidepressants recommended again based on opinion not research #MECFS

@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust “Dr. Lerner stated when his patients get well they tend to stay well. About 30% of them get up to 8 or 9 on EIPS Scale & stay there. There’s another group there needs some ongoing viral suppression. He noted that he was on Valtrex for six years is now off them entirely.” #mecfs

@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust #MECFS patients were treated with valacyclovir (14.3 mg/kg q6h) for ≥12 months. Each patient improved, based upon the Functional Activity Appraisal:“ Diagnostic panel to identify EBV subset (2012 ) journals.plos.org/plosone/articl…

@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust This looks like it has most of the links to his studies healthrising.org/chronic-fatigu…

@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust Lastly Dr Myhill has a page summary of his research drmyhill.co.uk/wiki/Valacyclo…

@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust This is the 2001 study by Lerner that NICE included in 2007 guideline evidence review , but excluded form the update evidence review . 2004 study looks like RCT aswell . None included or Henderson’s study . academic.oup.com/cid/article/32…

@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust Another study by different authors uses Valganciclovir onlinelibrary.wiley.com/doi/abs/10.100…

@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust Another study on long standing fatigue that I haven’t seen mentioned elsewhere pubmed.ncbi.nlm.nih.gov/17276366/

@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust Case study 1996 acyclovir beneficial pubmed.ncbi.nlm.nih.gov/8792488/

@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust Italian study found antiviral a/immunoglobulin most beneficial when compared to other treatments pubmed.ncbi.nlm.nih.gov/24254550/

@KCSteckel @davidtuller1 @MyhillNews @thestonebird @tymestrust @threadreaderapp unroll