Hi, the disability community just lost someone who was dismissed and ignored by doctors. You may feel like we're drug seekers and that the doc had a right to refuse but frankly I am so tired of seeing and experiencing this shit. If your patient ends their life bc you won't 1/?
Treat them I feel as though you should be prosecuted. This is murder. She went through the proper channels. She wanted pain management. She was fucking denied in Colorado of all places. This doctor should not be allowed to practice anymore. I'm angry, tired, and disappointed.
Frankly we all are. If you're wondering what you can do, you can spread her name. Erin Gilmer deserves justice so this can stop happening. I can't tell you how many times I have been in her position of questioning if I should keep going through all this pain. The system failed
Erin Gilmer. Just like it's failed so many others. Spread the awareness. Advocate for us. Stop allowing medical staff to dismiss patients pain. #ErinGilmer#NEISvoid
Hey guys I'm getting a little overwhelmed by notifications as this is the most RT and likes I've gotten on here. I'm muting it for now but if there's something specific you want me to share or fix dm me please.
I just want to let you all know that despite turning off notifications I have been coming back to read your stories, including replies and qrt. I want you to know that I see you. I believe you. We all deserve better. Thank you for sharing my thread.
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Here's a picture of me directly after having my shunt placed. I was so scared and tired. Having IIH you hear so many horror stories about VP shunts and all I could do was hope this device worked. Five months post op I can confirm is still works.
Here's me two months post op. I had no clue what to do with my hair as it started to grow back in. I was incredibly insecure with how my body looks now as it had new scars. I'm thankful I could trust Kelsie to do this shoot of me.
Here's me about a month before my life changed. Before I was diagnosed. I was in so much pain. Every new pose change my body was snapping and popping and I would wince as I held poses. By Kelsie again. She always has been patient with me. I'm thankful for her.