Here's a picture of me directly after having my shunt placed. I was so scared and tired. Having IIH you hear so many horror stories about VP shunts and all I could do was hope this device worked. Five months post op I can confirm is still works. Image
Here's me two months post op. I had no clue what to do with my hair as it started to grow back in. I was incredibly insecure with how my body looks now as it had new scars. I'm thankful I could trust Kelsie to do this shoot of me. Image
Here's me about a month before my life changed. Before I was diagnosed. I was in so much pain. Every new pose change my body was snapping and popping and I would wince as I held poses. By Kelsie again. She always has been patient with me. I'm thankful for her. Image
This is me before surgery. Post diagnosis. On so many medications. I had lost so much will to keep going. My hair was greasy from barely washing it. I hadn't touched up my color. Kelsie did this one too. She gave me a lot of confidence during this shoot. Image
I made this thread to show you that disability isn't always visible. We can disguise it, look pretty, and you could never know the story of bts. This thread is for the people who want a little bit of my story summarized.
I wanted to share some of the art I created with my beautiful yet broken body with the help of a really good friend. If you want boudoir photos and you're in TX hit up Flower Girl Boudoir Photography. Her name is Kelsie and she's a wonderful woman, photographer, and friend.

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More from @Queenbee075

9 Jul
Hi, the disability community just lost someone who was dismissed and ignored by doctors. You may feel like we're drug seekers and that the doc had a right to refuse but frankly I am so tired of seeing and experiencing this shit. If your patient ends their life bc you won't 1/?
Treat them I feel as though you should be prosecuted. This is murder. She went through the proper channels. She wanted pain management. She was fucking denied in Colorado of all places. This doctor should not be allowed to practice anymore. I'm angry, tired, and disappointed.
Frankly we all are. If you're wondering what you can do, you can spread her name. Erin Gilmer deserves justice so this can stop happening. I can't tell you how many times I have been in her position of questioning if I should keep going through all this pain. The system failed
Read 6 tweets

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