Share this page!

Blood Cancer UK Profile picture
Twitter logo
3 Jul, 6 tweets, 2 min read
💬 "My daughter Emma died tragically of #leukaemia aged just 7 months in 2012. Being a bereaved parent is a uniquely awful experience, I have found losing a child to cancer particularly traumatic. The isolation I have felt is unimaginable.”

#NationalBereavedParentsDay Image
"What does help me is Emma having a legacy. We do this through our fundraising for Blood Cancer UK and have created Team Emma who do events in her memory.”
"The hardest thing for me is that Emma was my only child, it took me a long time to say this but the most important thing is remembering I am still a mum. I will always be Emma’s mum and I will always be so incredibly proud of her amazing spirit."
❤️ Thank you so much Fiona for sharing your story with us for #NationalBereavedParentsDay.
Today is all about supporting bereaved parents and sharing advice on what helped you to cope. If you have any thoughts or recommendations, please share them in the replies to help others who may be going through a similar experience.
We understand that today may be a difficult time for some of our community. If it would help to talk, please do not hesitate to get in touch on 0808 2080 888 or support@bloodcancer.org.uk to talk in confidence.

• • •

Missing some Tweet in this thread? You can try to force a refresh
　

Keep Current with Blood Cancer UK

Blood Cancer UK Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @bloodcancer_uk

Blood Cancer UK Profile picture
5 Jul
1/ Many of you will be concerned about what this evening’s announcement that restrictions in England will be lifted on July 19 means for you.
2/ People with blood cancer are unlikely to have got as much protection from the vaccines as people without cancer, and so many of them will be worried about whether lifting restrictions is sensible at a time when the infection rate is rising.
3/ Lots of you have also told us it’s been great to start getting back to normal over the last couple of months, whether that’s been going shopping or meeting friends outdoors or at outdoor seating at pubs and cafes.
Read 7 tweets
Blood Cancer UK Profile picture
29 May
It's #ResearchSpotlight time! Today, we're shining the spotlight on Professor Francesco Forconi...

🔬 Follicular lymphoma and diffuse large B cell lymphoma (DLBCL) are the two most common types of non-Hodgkin #lymphoma. Image
We can treat this disease, but many treatments have harsh side effects.

💊 Professor Forconi from the University of Southampton wants to find better ways to treat these diseases.
🏷️ The team are studying ‘tags’ found on the surface of lymphoma cells, which they think tell the immune system to ignore the cancer cells. This means cancerous cells are not destroyed and are allowed to divide and grow in numbers.
Read 6 tweets
Blood Cancer UK Profile picture
11 Mar
1/ People with blood cancer will be concerned by this news. We have been worried about how much protection the vaccines will give people with blood cancer because vaccines do not usually work as well for people with compromised immune systems.
2/ This study, while not peer reviewed and only looking at a small number of people, adds to that concern.
3/ This means that if you have blood cancer, it is important that you do not assume you have protection even after you have had the vaccine, particularly after just one dose, and that you continue being careful to avoid Covid.
Read 10 tweets
Blood Cancer UK Profile picture
2 Jan
1/ THREAD: With many schools going back on Monday and the infection rate now high across the country, we are concerned that parents who have blood cancer are not being considered in the Government’s decisions.
2/ Where schools are staying open, the Govt urgently needs to give advice and support for parents with who are vulnerable. This include ensuring high-quality home learning is in place, so children don’t fall behind if they have to stay at home to protect the health of a parent.
3/ We know that many parents with blood cancer are worried about their children going back. If you have blood cancer and live in an area where the infection rate is high, we think it is now worth considering keeping your children off school if you can.
Read 8 tweets
Blood Cancer UK Profile picture
27 Nov 20
BREAKING: people with blood cancer who are extremely clinically vulnerable have been moved up the provisional priority list for a vaccine. They are now at the same priority level as people aged over 70. This is great news! /1
Previously, younger people with blood cancer were only expected to get a vaccine after everyone aged 65+ had been offered one. But the new priority list better reflects the fact that people with blood cancer are especially vulnerable to #COVIDー19. /2
There’s also the good news that adults who live with people with blood cancer will also get priority. This is important because any vaccine might not work as well in people with compromised immune systems. /3
Read 5 tweets
Blood Cancer UK Profile picture
27 Nov 20
⚠️ The Government yesterday published guidance for people in England who are clinically extremely vulnerable (CEV), for after England returns to the tier system on December 2nd.

Here are our thoughts (thread). 1/
gov.uk/government/pub…
It says: “your employer may be able to furlough you under the Coronavirus Job Retention Scheme, which has been extended until the end of March 2021”. 2/
This applies to all tiers, so if you can’t work from home you should speak to your employer about whether this is possible. But we’re concerned that elsewhere in the guidance it says that people who are CEV and can’t work from home can carry on going into work. 3/
Read 5 tweets

Did Thread Reader help you today?

Support us! We are indie developers!

This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Too expensive? Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal Become our Patreon

Thank you for your support!

Follow Us on Twitter!

Like this author's thread?

Get emails when @bloodcancer_uk has new unrolls!

Check out other threads from @bloodcancer_uk!

Read all threads by @bloodcancer_uk

:(