...but is rendered inaccessible because we are so thoroughly ingrained with the belief that self-medicine is dangerous.
And yes! It is! So is clinical medicine! I've had serious adverse drug reactions laughed out of the ER because "I've never heard of that happening"
I got berated for "disturbing everyone else in this ER with your screaming" after I was left on a gurney with a GI bleed for three hours.
But I'm supposed to desist from taking 1500mg/day of vitamin C to stabilize my mast cells because "we've had other patients take supplements and end up back here with bone marrow failure"
Dangers that originate from practices that challenge the authority of the clinic are validated as real.
And those that originate from practices endorsed by the clinic are dismissed.
Since at least 1322, when Jacoba Felicie was prosecuted in Paris for the unlicensed (but nonetheless effective) practice of medicine, the concept of safety has been weaponized to shut down practices that democratize the field of medicine.
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There are a ton of issues with this concept but the majority of the criticisms it's receiving iseen to be ignoring those in favour of a #PeeledOrangePhenomenon framing 🤨
[Video shows what is essentially an automated Murphy bed in operation - a bed descends from the ceiling along a motorized track, merging with the sofa and covering the coffee table in a studio apartment living space]
A primary issue is that, like so many accessible "innovations" this device and its maintenance will be financially inaccessible to those who would most benefit from having it.
Was kind of surprised this morning by how relatable people seemed to find this and literally just realized most of them probably aren't interpreting it as doubting yourself *because* your colleagues are congratulating you 😬
Quote tweet image: a meme showing Ed Milliband and Greta Thunberg standing side-by-side. Milliband is clapping while looking solemnly and directly at Thunberg who is wearing a look of Autistic uncertainty/discomfort. Text over Milliband says "My colleagues congratulating me...
...on my research" while text over Thunberg says "Me, doubting every single thing I've ever done" /description
Now, this man is an unmitigated jackass who smirked when I asked if my narcolepsy could be linked to my MCAS and laughed when I described symptoms of exercise-induced anaphylaxis (despite having authored one of the most-cited papers on EIA)
His reasoning was: "Benadryl will make you fall asleep but it won't give you good quality sleep and studies have found that long-term use leads to cognitive decline"
It comes back to the issue of medical (in)visibility.
Clinical medicine was founded upon the logic of pathology; it became concerned with mapping illness to visible (and eventually measurable) sites of pathology…
At roughly the same time as “the birth of the clinic” the period following the French Revolution saw the abolition of social institutions associated with the Ancien Régime, including the previous system of “bedside medicine”…
…so that the medical system in the French Republic became reoriented with the hospital at its center. The hospital brought together large populations of destitute sick people, and a new “collegiate” community of professional medical practitioners.
Do y’all want a really vivid example of what I mean when I say medical invisibility does not mean the same thing as regular invisibility?
You would think that when a wound like this bleeds like this, doctors wouldn’t ignore that right?
But when they can’t correlate that excessive bleeding to your platelet count or to a vitamin K or clotting factor deficiency, that is EXACTLY what they will do.
They will turn their heads from the photos and very literally refuse to see it.
When you finally figure out the cause on your own (heparin release from overactive mast cells), they will refuse to acknowledge it as a valid sign of a flare, and an indication that they need to adjust your meds.
1. I wondered about it a fair growing up and funnily, I was routinely pegged as queer by the other kids. But I didn’t have the language to describe my queer identities and thus to realize I actually “counted” til my mid to late twenties. #30DaysOfDisabledPride
2. Similarly, I always knew my bodymind was “different” growing up. I was a sickly, neurodivergent kid the latter of which was especially problematized by my teachers though no one ever bothered to label it with anything others than slurs or euphemisms. #30DaysOfDisabledPride
2 [cont’d]. I claimed disability when applying to university for the purpose of having access to accommodations (not that they made any) but I felt like I was cheating by claiming something I had no right to. #30DaysOfDisabledPride