Thread by @life_is_art___

It’s public comment time. #cdcowgChat

@Amy_L_Partridge just killed it! Go Amy go Amy Gooooo!

Now up #GaryFranklin. Hater of pain patients. Feeling’s mutual. #cdcowgChat

Now up, anti-pharma #FughBerman

@PainPtFightBack commenting now, addressing the suicides related to the cdc guidelines. Thank-you, Anne! Great job!!!!

Jenna, not sure if you’re on Twitter, but great job! -commented at 2:25

Now a medical device lobbyist. Yay.

Now Margaret Renee Blare from #NationalPainCouncil . Great job!

Now up, @CIAAG_Lauren . Great job!

Now up, @catman1361 ! Ty for talking about how MDs are being targeted unfairly by the opinion-based cdc guidelines! Talked about how he was prosecuted for treating his patients. #DEACenteredCare

Now up, #KristenMcGarity! Great job !

Now @LeahLonebear! Great job! Brought up both ACES caused by medical harm due to under-treatment, and #ErinGilmer ‘s murder that resulted from multiple MDs refusing to take her pain seriously. Ty, Leah:)

Now up @Wendysinclairme ! From @ORPainAction ! Talking about hard limits based on the guidelines, esp bad in Oregon. Also taking about conflation of pain vs. addx. Bravo, Wendy!

Now up @HappyWarriorP ! Said the 2016 guidelines were a Moral abomination. Also mentioned #ErinGilmer and how it was partially the CDC’s fault. Excellent job, Pete!

Now up @tal7291 ! Talking about the evidence base for the gl and how it there’s major selection bias in the systematic reviews! They don’t rep the patients that are effected by the gls. Great job, Terri! #cdcowgChat

Now up Jessica. A patient who’s been put thru hell from the gls. She was a legacy patient on high dose pain meds, and then workers comp force tapered her. She was forced off 1000 mme to 90. Omg TY Jessica

Now up Annette Maxwell. She’s taking about how they didn’t have data to support what’s they’re doing. She’s accusing them of group think due to focusing only on addx. (Excellent comments.)What they’ve created is a system where any pharmacists or veterinarians can overturn an rx.

Cammie Lavelle , great job.

Beth From Minnesota. Great comments about how the guidelines have hurt her and her mother!

Now up @fightpaindaily , burning up Chou’s COIs afa the CDC guideline. He’s involved in every part of the guideline and has only today admitted this. Calling for a congressional investigation! Great comments, Tamara!

Now up @kramers2006 ! Burning them up about the COIs and how ppl aren’t able to work due to being under treated. Great job!

@aander1987 speaking about how the broad implementation of the guideline has hurt so many. Ppl have been destabilized and it’s still going unabated. Note that AHRQ only focused on mild to mod pain and how MMEs are being used as standards of care and embedded into EHRs. Excellent!

Now up Julia Glatczak from Michigan. Talking about #MichiganOpen and @bcbs Michigan are paying MDs to rx less for surgery. Also to note, we need to refine and define palliative care. Great job !

Shirley with @APDF2020 ->The cdc shouldn’t be involved in pain care. They need to be held responsible for all the harms resulting from their gls. Pain patients aren’t being fairly repped. Too many COIs and many board members tied to rehab industry. Requests more pm MDs involved.

Andrea Ortiz repping #EDS patients. Many MDs are calling us too complex. Limited treatment to PT. Can’t get into PM. She’s called 11 PM MDs and they’re all only interventional pms. Not able to play w/kids. Was tapered in 2016, tricked into Suboxone and now labeled as OUD. Grt job

Dr. J Joshi- talking about the moral hazards and the problems w using the cdc gls in the legal/policy setting, knowing they will be implemented into settings they weren’t designed for. Asks for addressing the interpretations into policy settings.

Now Maria, a patient. Tells CDC it could one day be them in this situation w/pain. Opioids have always been the last result for most situations, now finding an MD is impossible. Forced to suicide or the streets. She was being treated well before the guidelines. Great job!

Now a lady( missed her name) 4:15pm : says she’s holding a form from her MD that mandated the gls and how patients are forced to choose . Patients are being treated like criminals. Been on meds for years. Said they’re not addressing the trauma that actually causes SUD, not meds.