If a disabled person tells you "I can't do that right now" and your reaction is "sure you can" you may be misunderstanding something.

"I can't do it right now" can be short for "I could do it but it would cost me energy I'm not willing to spend right now", and that's _fine_.
"I can't do it right now" can also be short for "this is not a thing I am ever able to do."

It can be short for "Fuck off, you are not entitled to my limited time and energy."

It can be short for "I feel so much shame around this, please don't push because I will cave in."
It can be short for "I can totally do this but I'm self-conscious about the way I do it and absolutely can not do it in front of you."

It can mean "I don't understand what you're asking me to do, and I don't know how to get clarity."

It can mean "I am hella triggered, back off"
The point is, we all understand that consent is really important.

Not respecting the boundaries that disabled people set up -- especially invisibly disabled people -- means not trusting us to give or withhold consent for certain interactions.

The "why" isn't your business.
(Other variants of “sure you can”:

“Please? I really need the help.”

“But you just did the same thing yesterday.”

“Stop being lazy.”

*passive aggressive frustration*

“I’d do it for you!”

“It’s not that hard!”)
Season with "My cousin is autistic and you're nothing like him" to taste.

A lot of people are drawing the next obvious conclusion - that really, we should be able to remove the word disabled from the above thread and it should still hold true. Boundaries are not always easy to learn, but it's worth the investment.
Listen: I've made huge mistakes with boundaries. I've bowled over peoples' boundaries because I didn't see them, I've ignored them when they felt inconvenient or I didn't understand them, I've argued with them when it was utterly inappropriate to do so.

I had to learn, slowly.
One thing I learned is that it's really hard to respect other peoples' boundaries when yours are constantly ignored. As an invisibly disabled person I internalized early on that boundaries are optional, that agency and power means ignoring boundaries. That's dangerous.
As disabled people it's important for us to be able to enforce and defend our boundaries in order to overcome a lot of the effects of being disabled in an abled world. It's sort of a rite of passage in some ways, being able to say "no" and meaning it.

Please, respect it.
(It's how this pipeline works, which is often a necessary step to healing for those of raised to feel like the world doesn't care about our needs and so we have to advocate for ourselves.)

One more variant on this, in my life: it's not uncommon for me to say "I'll do it later" as a way of saying "I can't do it right now."

The problem is, I don't actually mean I'll do it later. I just learned that that incantation will make people (temporarily) accept my boundary.
This really bums me out, though, because I then am failing to follow through on a thing I said I'd do, that I have no interest or ability to do. A big growth edge for me has been realizing that this "I'll do it later" no longer works for me, I think.
Anyway, stopping there but check out my soundcloud I mean pinned tweet to learn about Autism and ADHD, to read thoughts about culture and to catch a few of my better threads. Thanks for reading!

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More from @mykola

24 Jul
Not to pick on @ai_action but this is exactly what so many abled people think.

Why would you think that you understand my own capabilities better than I do? And why would you assume that based on that understanding you can ignore my boundary?

Where is my agency here?
It may 100% be absolutely true that some people can do more than they think they can, with X cost under Y condition.

It's also NOT YOUR JOB to "help" them get to that point, unless they specifically ask you.
If you push a disabled person in this way they may feel pressure to collapse their boundary (because this happens constantly, and it's hard to maintain boundaries against resistance) and you'll think you've "helped" them when you don't know the cost.
Read 7 tweets
22 Jul
I was making $28k as a video producer for the ohio state university when I started doing tech work. My first programming job doubled that salary and I thought I was in heaven.

I left for more money in 6 months, but came back as a consultant for even more money after that.
One thing that having skill in tech work teaches you is that money is a story companies tell about how resources are allocated.

What is a lot of money to one company is literally nothing to another one. What is a huge salary to one person is an offensive pittance to another.
What's always true is that you are necessarily in an adversarial relationship with your company with respect to compensation -- on some level, they want to pay you less and you want them to pay you more. Navigating that effectively is tricky, but win/win is possible.
Read 10 tweets
22 Jul
I received a package yesterday, some stuff I forgot at an ex's in another state many years ago. It's been through some hands since then. One of the items is my old shinai -- my kendo stick.

I was a swordfighter in college.
I haven't held this thing in decades, but I pulled it out of the box and it was like 20 years evaporated in an instant. It is light and fast and balanced and feels good in my hands and is discovered with my own sweat.

I have defeated stronger opponents than me with that sword.
I approached kendo the way I approach most things in life - I kinda bumbled forward towards a vague goal of having a good time.

It was hard for me, but I stuck with it -- unheard of at that age.
Read 14 tweets
22 Jul
Can we talk about season 1 of Westworld yet? Statute of limitations on spoilers is up, right? This thread will contain spoilers, if you haven't seen it - don't read if you're into genuinely amazing fiction about consciousness and identity.
One of the show's primary conceits is that there are these AI-based robots who aren't really fully "real" from their programming alone.

But they find that if an AI is given a traumatic background event that compels their attention over and over a form of consciousness develops.
So like, you're not real until you've suffered enough to understand the relation of existence to suffering.

Which is at once deeply problematic and also really interesting. It reminded me heavily of Hofstadter's work on AI, which is different from all the other AI work out there
Read 9 tweets
21 Jul
Anyone sometimes just sit quietly for a moment and remember that episode of South Park where they talk about ADHD diagnosis and basically make fun of anyone who acts like ADHD is real?

How much harm you figure that did to us, overall? One TV episode, how far back did it set us?
(God, I remember when I used to think South Park was smart and funny. Sigh.)
South Park is "I'm a White Man with a White Man's Opinion" presented as some sort of animated punk rock.

Like every edge lord ever, they're not nearly as clever or interesting as they think they are. Pointing out imperfections is easy, supporting The Work is hard.
Read 4 tweets
20 Jul
*sings* If you have ADHD you might be autistic too and not know it, and a lot of big ADHD accounts are often including Autistic symptoms in their list of what it's like to be ADHD.

Autism isn't a bad word or scary or anything, it's a valid way of being just like ADHD.
You: "All these ADHD instagram accounts really resonate, especially the ones talking about sensory overload and social challenges."

Me: "ADHD and Autism are frequently comorbid, and you may be surprised by what you learn if you read about today's Autistic culture."
You: "My ADHD meds have really helped me manage a lot of things in my life, but I still get really confused by a lot of communication with people even when medicated."

Me: "Communication challenges are often not merely the result of unmedicated ADHD, and it's worth learning why"
Read 8 tweets

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