Share this page!

Brianne Benness Profile picture
Twitter logo
5 Aug, 6 tweets, 2 min read
I do not have the capacity to make words about a bbc article legitimizing illness faking claims. have not read; will not read.

the entire premise is poison.
(previous somewhat related words)
platforming this shit hurts disabled people. it hurts undiagnosed chronically ill folks especially, who may be discouraged from seeking community online for fear that self-reported experiences will be doubted, questioned, disbelieved. (the same responses they get irl.)

poison.
I am still not watching it but also angry.

I would like to watch a documentary about people who got sucked into IF and how they came to realize that IF is an ableist hate community that exists outside reality.

• • •

Missing some Tweet in this thread? You can try to force a refresh
　

Keep Current with Brianne Benness

Brianne Benness Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @bennessb

Brianne Benness Profile picture
6 Aug
pitch: tv show called Fakers about a bunch of undiagnosed chronically ill people performing wellness in order to survive as they try to figure out wtf is going on with their bodies in the face of systemic disbelief.
maybe a dramady set in a Health Anxiety support group in which a couple folks genuinely have HA & everyone else is blatantly ill (and some both).

open with montage of doc appt in which each person is referred to the group & fobbed off according to strongest med biases they face.
patient: I feel faint if I stand too long & I'm worried I'm going to get hurt at work, are there any tests you'd recommend?

doctor: it sounds like you're really catastrophizing! before we talk tests I'm gonna refer you to a Health Anxiety group so you can manage those thoughts.
Read 5 tweets
Brianne Benness Profile picture
3 Aug
some of the replies lead me to believe that a lot of people think long haulers are getting way more help than they are actually getting.

media coverage ≠ competent & accessible medical care.

graded exercise therapy & CBT ≠ competent medical care.
like I absolutely hate it here in this part of the multiverse sometimes, but dedicated long covid clinics that only offer GET & CBT are *worse* than no clinics at all.
long haulers need money so they can rest & pursue competent personalized care, they don't need to get sucked into a decades-long violent campaign to somaticize post-viral illness.
Read 4 tweets
Brianne Benness Profile picture
1 Aug
okaaaaay starting Shrill season 3
I appreciate the way this show and Special take shots at online publishing.

also all tv currently makes me nostalgic for seeing multiple people every day? not to defend offices, which I would never do.
"ok Annie given your signature emotional acrobatics you got what you wanted, our undivided attention" 💀
Read 5 tweets
Brianne Benness Profile picture
7 Jun
I've been watching a lot of supernatural tv lately (obviously) and I am so intrigued by plotlines in which very sick people ask to be turned into [vampires/zombies/etc] to be free from their illness.

but then they get very sick if they don't have [blood/brains/etc]. 🤔
just like, writers, stop doing this.

being completely dependent on a difficult-to-access substance in order to keep your body on an even keel is how many illnesses work? better writing could explore this trade-off of one disability for another?
like my illness basically requires me to drink over a gallon of salty water a day if I want to be upright. this is inconvenient for a variety of reasons.

I suspect that having the same relationship with like human blood would be... not necessarily better?
Read 4 tweets
Brianne Benness Profile picture
24 May
not for the first time, I have Some Notes about cervical spine design
I try not to think about my cervical spine at all*, but whenever I do think about it I imagine an extremely spiky and unstable tunnel in which my spine worm is fighting to thrive.

*because if I think about it in any kind of detail I trigger a vasovagal episode. haunted, etc.
also at this point I assume the vasovagal response to *thinking about spinal anatomy* is a feature, not a bug.

you know, like of course the perilous tunnel that all life depends on has an unsettling security system to prevent me even *thinking* about it. of course it does.
Read 5 tweets
Brianne Benness Profile picture
19 Mar
This is definitely a must-read for all disability & healthcare advocates!

(especially if you’ve been comparing long covid to polio without acknowledging the decades of dismissal faced by ME patients & advocates who could see this mass gaslighting coming)

vice.com/en/article/qjp… Screenshot of text that reads “The answer is simple: Our m
the scream you just heard was me, reading this:

“The average time to an MUS diagnosis for a patient presenting with new symptoms was 4 minutes & 25 seconds—and the median time, which is more representative because it eliminates the effect of outliers, was 1 minute & 47 seconds.”
💯💯💯

“The failure of that system forces patients with complex medical conditions into the welcoming arms of charlatans whose main virtue is the time they spend listening.”
Read 4 tweets

Did Thread Reader help you today?

Support us! We are indie developers!

This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Too expensive? Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal Become our Patreon

Thank you for your support!

Follow Us on Twitter!

Like this author's thread?

Get emails when @bennessb has new unrolls!

Check out other threads from @bennessb!

Read all threads by @bennessb

:(