pitch: tv show called Fakers about a bunch of undiagnosed chronically ill people performing wellness in order to survive as they try to figure out wtf is going on with their bodies in the face of systemic disbelief.
maybe a dramady set in a Health Anxiety support group in which a couple folks genuinely have HA & everyone else is blatantly ill (and some both).
open with montage of doc appt in which each person is referred to the group & fobbed off according to strongest med biases they face.
patient: I feel faint if I stand too long & I'm worried I'm going to get hurt at work, are there any tests you'd recommend?
doctor: it sounds like you're really catastrophizing! before we talk tests I'm gonna refer you to a Health Anxiety group so you can manage those thoughts.
spouse just told me, unprompted, that he didn't want to watch my tv show because it "sounds depressing".
oooh and start the montage with people getting ready at home, thinking through their doctor strategy as they get dressed, considering how well to present, practicing innocent probing questions in the mirror.
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like I absolutely hate it here in this part of the multiverse sometimes, but dedicated long covid clinics that only offer GET & CBT are *worse* than no clinics at all.
long haulers need money so they can rest & pursue competent personalized care, they don't need to get sucked into a decades-long violent campaign to somaticize post-viral illness.
I've been watching a lot of supernatural tv lately (obviously) and I am so intrigued by plotlines in which very sick people ask to be turned into [vampires/zombies/etc] to be free from their illness.
but then they get very sick if they don't have [blood/brains/etc]. 🤔
just like, writers, stop doing this.
being completely dependent on a difficult-to-access substance in order to keep your body on an even keel is how many illnesses work? better writing could explore this trade-off of one disability for another?
like my illness basically requires me to drink over a gallon of salty water a day if I want to be upright. this is inconvenient for a variety of reasons.
I suspect that having the same relationship with like human blood would be... not necessarily better?
not for the first time, I have Some Notes about cervical spine design
I try not to think about my cervical spine at all*, but whenever I do think about it I imagine an extremely spiky and unstable tunnel in which my spine worm is fighting to thrive.
*because if I think about it in any kind of detail I trigger a vasovagal episode. haunted, etc.
also at this point I assume the vasovagal response to *thinking about spinal anatomy* is a feature, not a bug.
you know, like of course the perilous tunnel that all life depends on has an unsettling security system to prevent me even *thinking* about it. of course it does.
This is definitely a must-read for all disability & healthcare advocates!
(especially if you’ve been comparing long covid to polio without acknowledging the decades of dismissal faced by ME patients & advocates who could see this mass gaslighting coming)
“The average time to an MUS diagnosis for a patient presenting with new symptoms was 4 minutes & 25 seconds—and the median time, which is more representative because it eliminates the effect of outliers, was 1 minute & 47 seconds.”
💯💯💯
“The failure of that system forces patients with complex medical conditions into the welcoming arms of charlatans whose main virtue is the time they spend listening.”