Can we talk about the word “psychosomatic” for a minute?

Like most people, I used to understand this word to mean “the cause of your symptoms has been discovered to be psychological, and must be treated as such.”

But that’s not quite how it’s used in practice.
In practice, diabetes was considered to be psychosomatic until we discovered insulin.
In practice, Lyme disease and the horrific symptoms that can follow it have historically been written off as psychosomatic.
In practice, there was published research arguing that AIDS was psychosomatic.
Anyone with adhd knows how easy it is to have our challenges reframed and dismissed as psychosomatic - “go to therapy and take meds and if that doesn’t fix you you must not be trying hard enough.”
In practice, ME/CFS has been treated as psychosomatic. In fact, despite the fact that we now have a ton of bio markers showing that it’s neuroimmune there are still doctors who insist it’s psychosomatic.
In theory, “psychosomatic” means “we found evidence that the problem is psychological.”

In practice, “psychosomatic” means “medical science can’t determine the cause of your symptoms, try therapy.”

Do you see the problem?

Where is the evidence?
In practice, “psychosomatic” means “the medical system has given up on you.”

Now, when you point this out you’ll get people who accuse you of not caring about mental health. “Psychosomatic doesn’t mean not real!” they insist as they terminate treatment.
It’s entirely possible - even likely! - that some people get sick because of a psychological condition.

What I didn’t realize is that when doctors say this they always do it in the absence of any evidence at all and simply assume if they can’t explain it it’s psychological.
So when you see people dismissing anyone’s Long Covid as psychosomatic, you can know they’re in the same historical company with people who have said the same about everything from diabetes to AIDS.

That certainty is misplaced, and this suffering is very real.
Any medical professionals that want to disagree, tell me about all the patients you have diagnosed with psychosomatic illness *and then kept in touch with to see how that treatment worked* and seen success.

Anecdotally I’m sure it happens.

Systemically I’m sure it doesn’t.
Anyway. This is a thing I had to learn.

NEVER suggest to your chronically sick friends that their illness might be psychosomatic.

That’s not a friendly attempt at helping them get better, that’s a kick to the head implying that you don’t believe them.
I didn't realize that Multiple Sclerosis was also in this camp, but of course. Everything is "psychosomatic" until they find biomarkers, and even then much of it remains "psychosomatic" until that doctor retires.

But when you say this people tell you you sound like a QAnon person.

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More from @mykola

13 Aug
Q: how many autistic people does it take to change a lightbulb?

A: that depends entirely on the size and location of the lightbulb. A single autistic person can change most normal bulbs, but changing a bulb in a traffic light requires special tools and collaboration.
A lightbulb on a submarine, for instance, is more complicated. Is the submarine currently submerged? Can the bulb be changed while submerged, or does the ship need to surface first? If the latter, do we say that any autistic people on the crew are participating in the process?
Or what about a lightbulb on a satellite in orbit? Sure it may technically only require a little work to change, but getting the autistic person and the new bulb in a position where they can change it, why, you need a whole space program.

(lots of autistic people there)
Read 7 tweets
13 Aug
I posted a tiktok video talking about alexithymia. I’m going to try to do a whole series using the #ndconcepts hashtag and then reshare here as I go.
And here’s one talking about a key insight in my own life that I learned from the always incredible @ahandvanish — it turns out that emotions make way more sense when you realize they’re senses.
On CPTSD — this cuts off the last bit, which explains my theory as to why so many ND people have cPTSD. Go watch it on tiktok, I’m mykola_b there
Read 10 tweets
13 Aug
Docker experts, halp?

I've got a public/assets folder which is populated by webpack running on my local file system. I have volume mounted it into my container.

When I ssh into my container I can cd into `public/assets` but then I get this. ```/webapp # cd public/assets /webapp/public/assets # ls -la
What is happening? Webpack isn't even running when I built my container, so in theory this stuff should all just be static files on the file system.
This seems like some sort of really bizarre bug. I do include some stuff from `public/` in my `.dockerignore` but then I link the `public/` volume into my container so all of that stuff should just get transferred.

Unless... does webpack do weird stuff with symlinks?
Read 6 tweets
9 Aug
This is very, very real.

Allistic students will project all of their insecurities on you if you use words they don't know or if you speak in a weird way or if you move funny or are in any way different.

Then they punish you for it.

While teachers mostly stand by and watch.
"Just ignore them"

"You shouldn't provoke them"

"In the real world you have to learn to get along with people."

"Well of course people beat you up you're really obnoxious"

My PTSD remembers you assholes.
I've read that today's kids are much better than this.

Certainly anecdotally the kids I know go to a Montessori school where they say there's no bullying, and mean behavior is met with compassion and care from everyone.

I can't even imagine what that must be like.
Read 4 tweets
9 Aug
Friends I have a pair of really expensive, really nice headphones that I bought years ago when I was tech consulting.

They sound AMAZING, like literally the difference between old TV and 4k TV.

But: the jack got damaged. I have to position the cable to get one side to work.
Is there a way to fix this?

In theory I could, like, cut it and reattach it -- but it's a braided cable with a rubber stopper at the end, it feels weird to try that.

How do you fix the internal connections to an audio jack?
Read 4 tweets
9 Aug
Proposing “We Didn’t Start the Fire” as the official anthem of process metaphysics.
(Process metaphysics says, “there are no things, only one long ongoing verb that we create things out of as suits us but which we mistake for real when really they’re just models. So any thing is composed of past process output. There’s no vacuum.)
Drat missed the closing quotation mark but not the closing paren, now I can’t fix it!
Read 4 tweets

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