like the fact that I need to completely ignore all the encouragement to exercise more from my (otherwise helpful) fitness tracker is the same problem as how just about every commercial electrolyte blend is developed & branded for either exercise or the stomach flu.
do these companies somehow not know that we're using their products?

do they think explicitly marketing to us will cheapen their brand?

do they lack the cultural competence to actually work with our communities?

🤔🤔🤔
even liquid IV, which has a special coupon code for dysautonomia, does this on their packaging.

I promise you that none of these are among my priorities. (yes I know we're probably under the Wellness umbrella.) photo of a section of liqui...
"we'll market our product to you, but only if you're willing to pretend that you're buying it to Get Healthier!!!"
I'm sick af sometimes and I don't need or want anybody trying to sell me on the fantasy of getting better.
"oh, you have a condition that can be exacerbated by exercise and you need our product to manage your symptoms? great!

we'll make sure that every part of your customer experience is focused on exercise, that thing that may be actively dangerous for you!"
sometimes one just needs to get angry about something relatively trivial.

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More from @bennessb

13 Aug
I'm trying liquid IV for the first time because heat wave and I resent the heck out of needing expensive individually wrapped consumer products to survive.

(tho if you buy directly from them I think there's a discount code: POTS30)
lots of medical products need to be individually wrapped for safety. this is not one of those situations.
Read 7 tweets
12 Aug
tbh I’m actually pretty tired of articles about how doctors are SHOCKED to learn that they are treated poorly when they become patients.
thank you for announcing that you were completely unaware of the biases and abuses you were directly participating in for many years. I feel much better now.
or, more likely, thank you for announcing that you always thought people deserved to be treated that way until it happened to you personally.
Read 4 tweets
6 Aug
pitch: tv show called Fakers about a bunch of undiagnosed chronically ill people performing wellness in order to survive as they try to figure out wtf is going on with their bodies in the face of systemic disbelief.
maybe a dramady set in a Health Anxiety support group in which a couple folks genuinely have HA & everyone else is blatantly ill (and some both).

open with montage of doc appt in which each person is referred to the group & fobbed off according to strongest med biases they face.
patient: I feel faint if I stand too long & I'm worried I'm going to get hurt at work, are there any tests you'd recommend?

doctor: it sounds like you're really catastrophizing! before we talk tests I'm gonna refer you to a Health Anxiety group so you can manage those thoughts.
Read 5 tweets
5 Aug
I do not have the capacity to make words about a bbc article legitimizing illness faking claims. have not read; will not read.

the entire premise is poison.
Read 6 tweets
3 Aug
some of the replies lead me to believe that a lot of people think long haulers are getting way more help than they are actually getting.

media coverage ≠ competent & accessible medical care.

graded exercise therapy & CBT ≠ competent medical care.
like I absolutely hate it here in this part of the multiverse sometimes, but dedicated long covid clinics that only offer GET & CBT are *worse* than no clinics at all.
long haulers need money so they can rest & pursue competent personalized care, they don't need to get sucked into a decades-long violent campaign to somaticize post-viral illness.
Read 4 tweets
1 Aug
okaaaaay starting Shrill season 3
I appreciate the way this show and Special take shots at online publishing.

also all tv currently makes me nostalgic for seeing multiple people every day? not to defend offices, which I would never do.
"ok Annie given your signature emotional acrobatics you got what you wanted, our undivided attention" 💀
Read 5 tweets

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