Thread by @KirstieWrites

Not only do we need pushback from the ME charities now as the offensive begins but we will also need practical support to get through what could be an anxious and dark time where yet again #pwME will be vilified and misrepresented. /1

@MEAssociation @actionforme @MEActNetUK

https://twitter.com/ABrokenBattery/status/1427536240711249927

It is always such a fight to be heard and taken seriously and whislt we may have some success with the new NICE guidelines if GPs still resist this what really will change? How many people in the community will feel shattered by the BPS offensive that has already started /2

Potentially to the point that both their physical and mental health suffer? Sadly I see more harm in the short term rather than less unless our charities have something up their sleeve. So we need guidance, advocacy and pastoral support to step up a gear in the coming weeks /3

We also as an online #MECFS community need to help each other too with all of this. Not just by advocating but being there and holding a space for people who might not be coping so well with the fallout of this particular battle. /4

So if it gets tough for you know that I will be here to listen and hold a space. DMs are always open. I reply when I can (energy permitting). This disease is tough enough without being a political football and we have been kicked around enough /End