Unbelievable. A tiny cadre of powerful psychiatrists with their legacies on the line are stepping in to try to overturn scientific consensus and the advocacy of tens of thousands of ME patients. UK healthcare is just as broken as US healthcare, just in a different way.
https://twitter.com/b_m_hughes/status/1427644559597703168
My husband teaches their research in his undergraduate statistics class at Princeton as a case of how not to do science (or statistics). Psychology colleagues of his talk about their work as examples of that field’s replication crisis (alongside US scandals in other sub fields).
They’re either unethical, incapable, self-deluded, poorly trained, or some combination. No one takes their work seriously on this side of the ocean. And yet the grip they have is unbelievable. Apparently in UK medicine, social networks are more important than science or patients.
I can’t go into the details but a project I was working on in the UK got killed by a friend of theirs who happened to be in a position to do so. The smoky rooms at Oxbridge stereotypes are real!
I have seen similar dynamics at play in completely different disease fields. Mass patient advocacy is framed (by psychiatrists) as illegitimate, and science is ignored, but backchannel elite pressure is…just fine?
Copying @NICEComms because presumably someone there cares about the reputation of NICE which frankly is going to take a huge hit if they don’t return to their original course.
For context, yesterday @thetimes reported on the new guidelines, which were to drop CBT and GET (we have fought for this for 30 years). Today @NICEComms announced they were pausing publication. thetimes.co.uk/article/disput…
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