Some of us are trying to get food and transport money to mothers of autistic children, to get clinical professionals to #AllowAACinTherapy, to #StopChemicalRestraints and to #ListenToNonspeakers.

But the noise people hear out there is a chorus of "OMG, Elon Musk is autistic!"
And although I don't think Elon Musk is all that cool, I'm OK with celebs coming out; it's just that they often don't understand where some of the dire needs are, and they certainly aren't putting their money there.
When last did a celebrity autistic say #IStandWithNonspeakers? They just step aside from that part of autism advocacy because they know they'd be out of their depth; so they leave it to the professionals and the moms to speak over nonspeakers. All they needed to do is to say,...
"I'm going to #ListenToNonspeakers. Join me!"

And then the next week, "I'm listening to nonspeakers! I'd like to share a passage from Ido's second book!"
And then the week after that, "I have some special guests on the show tonight. Allow me to introduce Hari Srinivasan, Damon Kirsebom, Jordyn Zimmerman and Zekwande Mathenjwa, who are going to talk about their goals for autism research."
And then: "Hey, everyone, here are the blogs and social media accounts of the people I interviewed last week, and guess what, we've had so many people contacting us as a result of the show, saying, 'Wow, how did you get to communicate like that, my son is 37 and he can't do it.'"

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More from @ekverstania

15 Sep
In this thread, I am going to provide definitions for some of the key concepts which often feature in discussions, training, arguments and even academic papers about autism.
Defining them and agreeing about the definitions can help us reduce our arguments and gain consensus more quickly -- or at the very least, it can help to ensure that we're at least arguing about the same thing, even if we don't agree about how to approach it.
Read 143 tweets
15 Sep
I have repeatedly stated that while I support the #StopSpectrum10K campaign, I am in favour of genetic and biological research. There are numerous autistic activists with chronic illness who feel the same. Some even attend biology research conferences.
We know that the @spectrum_10K do not support the social model of disability. That is not news.
It came as something of a surprise that the @spectrum_10K leaders deliberately appointed the type of people they knew would destroy the hope, relatability, community-building and support offered by people like Pete.
Read 35 tweets
14 Sep
Pete was a great community connecter, a good explainer and a humble learner. He was helping people who don't usually #ListenToNonspeakers realise that nonspeakers deserve our advocacy and amplification. I am angry with the leaders of @spectrum_10K who are to blame for him going.
Maybe you will say that the leaders of @Spectrum_10K are INDIRECTLY to blame. I disagree. This is squarely their fault. They enabled this, they continue to support this. They deliberately keep their ambassadors out there to say their quiet part out loud.
An organisation which finds that its representatives are not representing them well, can reel them in or dismiss them.

Read 49 tweets
14 Sep
[THREAD] Black and White photo gallery
Two exceptionally tall brothers from Kashmir who worked as bodyguards to a king in the early 20th century.
Stevie Nicks, American singer, songwriter and producer.
Read 31 tweets
13 Sep
[THREAD] Addressing chemical restraint in Western Cape Schools 🇿🇦
Some schools in the Western Cape are allegedly coercing parents into drugging their disabled children.
Chemical restraint happens in schools in several countries. It is often perpetrated against disabled children by people in authority at SEN schools. Parents are coerced into complying with the school’s demand that they drug their children.
Read 47 tweets
13 Sep
I just attended my first SASL class, taught by Ayesha Ramjugernath, who is Deaf. It was great, she's so knowledgeable about dialects, synonyms, etc. that you wouldn't easily get from a hearing person who uses it as a second language.
She goes so fast, though, that I miss a lot; but I gradually recognise how some words are put together... general rules (with exceptions).
Just looked up the grammar and found:
Read 8 tweets

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