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AutisticSciencePerson #StopShockingDisabledPeople Profile picture
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21 Sep, 4 tweets, 1 min read
I'm worried that I'm going to burn myself out to finish my PhD and if I get to that point of stress,

I'm not sure whether I'll decide to do it anyway, or hope it's good enough/get a masters.

I honestly don't know what I'll do. But it's really not been great lately.
I see-saw between "I'm never going to get this done I must work constantly" and "maybe I should sleep 15 hours today" and I don't know how to do anything between those two things.
The other thing I have to remember though, is if I decided to stay in the spring (which I really really don't plan on doing whatsoever),

I'd just continue to be in this state of stress until it was done anyway. It's not like the pressure would get better.
PhD thesis stress is such a very specific sort of stress and it never really goes away until you defend or leave.

I really don't know of any other kind of job that has a similar amount of awfulness.

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More from @AutSciPerson

AutisticSciencePerson #StopShockingDisabledPeople Profile picture
20 Sep
Here's a short thread on ambiguous instructions, and the energy autistic people have to spend to figure out what someone or something is really saying.

I'm currently cooking dinner, this dinner -

I want to focus on step 1.

#ActuallyAutistic
1/6 Cooking instructions. Cook only one bag at a time. For food
Step one says "Heat large non-stick skillet over medium-high heat until hot, about 2 minutes. Add meal to skillet."

However, the picture is only of someone pouring a box of food into the skillet itself.

I spent an actual 1 minute staring at that picture being confused.

2/6
You see, if I were to write those instructions, heating up the skillet until hot "about 2 minutes" would have been its own step. Because there's no picture of it here. All that is shown is pouring food into the box.

3/6
Read 8 tweets
AutisticSciencePerson #StopShockingDisabledPeople Profile picture
20 Sep
Kid: Tells an adult they are getting bullied.

Adults: Post this online and bully the kid more.

Yea that's a pretty good summary of what being autistic is like...
Things grown adults are saying about this child:
"Square ass"
"Smart ass"
And most common - "snitch."

The mixed messages adults give kids about bullying and telling adults,

With the implicit message that you should not do it or else you're "weak"

Is huge.
People are even saying this kid should be spanked or whipped for "snitching."

Noting his "strange" body language and how he ended the conversation. Saying he must have other motives.

This is why and how autistic black boys go to prison for doing nothing criminal.
Read 8 tweets
AutisticSciencePerson #StopShockingDisabledPeople Profile picture
20 Sep
Literally Discrete Trial Training (or DTT as they call it):

Is just going
"Where's the blue square? Touch the blue square"

And if the kid doesn't do it -for any reason-

they just KEEP ASKING.

Imagine hearing "Where's the blue square?"
30 or even 60 times in a row.

1/3
Imagine getting driven to a building, being asked to sit down in a chair, and getting the question "Where's the blue square? Touch the blue square"

every day for weeks on end.

People still try to say "but they don't do punishment."

Doing that to children
Is
Punishment!!
Not getting to stand up out of the chair, not getting to stop hearing "Where's the blue square? Touch the blue square."

Not being able to get this stranger out of your face.

Not being able to take a break and do something else you like when you want and need it

Is
Punishment.
Read 10 tweets
AutisticSciencePerson #StopShockingDisabledPeople Profile picture
13 Sep
I would like to find the genes for neurotypicalism so they can get better supports early in life.

Finding out this information will help neurotypical well-being and quality of life, and help with co-occurring conditions.

Please ask your neurotypical children to spit in a tube.
We have 3 neurotypical ambassadors, 4 neurotypical people on our annual advisory panel, and we're willing to consult with neurotypical people and their families after starting to recruit.

We can't disclose researcher's diagnoses so we can't answer about the researchers.
We are not looking for a cure for neurotypicalism but this research may in the future lead to a genetic test for neurotypicalism.

We are anti-eugenics.
Read 5 tweets
AutisticSciencePerson #StopShockingDisabledPeople Profile picture
13 Sep
Just to clarify regarding the #Spectrum10K study..

Collecting genetic data of a very specific subset of autistic people who have official diagnoses will always be biased.

Using questionnaires made by NTs to describe autistic "behavior" will always be biased.
1/10
Something they note in their preprint is that SPARK didn't seem to have a lot of questionnaires. Most of them are parent-report.

Even if they have more questionnaires in the UK study, they will likely combine this with SPARK.

So any other questionnaires are going to be moot. 2/
I'm not sure how many samples they would need to correlate questionnaires to polygenic scores, but I bet it's more than 10,000.

I'm also assuming they'll use family without diagnosis as a control - which is not a true control. Don't remember if they do this in the preprint. 3/
Read 11 tweets
AutisticSciencePerson #StopShockingDisabledPeople Profile picture
12 Sep
Every day that I have an outing,

and my venous malformation doesn't hurt me,
and doesn't hurt me the next day,

I thank my weird-looking, very ugly toe shoes. 💜

Took me a surgery that didn't work, and 3 years of going through footwear, but I finally found it.
Physically abled people will always have something to complain about.

They'd tell me I need to get foot surgery (part of the reason I tried it - 3 week recovery).

They'd joke that I should "just amputate it" (so overdone and absurd).

Now they tell me my shoes look ugly.
I don't usually say this,

but I will say fuck off to anyone who complains that my shoes look ugly and I need different ones or they're not appropriate for the occasion.

People not in pain simply have no idea.

I'd rather not be in pain everytime I take one step,
thank you.
Read 6 tweets

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