Context for this: I spend substantial amount of time reflecting upon aspects of myself & actions, to try & better understand myself to regulate potentially problematic features. Some of communication style seems to be due to ADHD.
As I have not engaged much ADHD, & awaiting to be assessed for ADHD, there are potentially parts of myself I lack appreciation of how are viewed by others. Which then makes me on how we go about identifying aspects of persons.
So, yes, I accept that various diagnoses can be used to increase understanding for persons. Like how PDA pathologises different features to autism, hence why some persons find a PDA diagnosis better explains them than autism does.
The current approach of iterative, almost sequential assessment for different diagnostic categories holds persons back, & creates barriers to persons understanding themselves. Surely, we can do better than iterative, sequential assessment model practiced?
I already agree that there is a good case to stop using Disorder, & to abandon them. I think this is a few decades long cultural shift.
More recently, over the last 2 - 3 weeks, I have been increasingly thinking a transdiagnostic approach is probably best approach to mapping features typically associated with Disorders.
It makes sense, as approaches/ strategies tend to be issues/ symptom specific, not diagnoses specific. Surely, it makes sense to construct profiles for persons which are independent of categories?
Actually how a transdiagnostic approach should operate in practice? Should Disorders be used in a minority of cases to ensure "complex" cases receive adequate support?
I am still reflecting on. I think how we go about mapping features typically associated with Disorders & supporting persons, is not an easy answer. Any practiced has winners & loosers/ benefits & drawbacks.
I mean actual specifics of how a transdiagnostic approach would work, like what exact profiles of a person would actually be mapped in assessments, like sensory, to communication styles?
I need to be clear, it is not even my own experience with engaging with other diagnostic constructs. Reflecting on impact of giving persons few, several, dozen, or more diagnoses.
How is it a good thing to give persons so many constructs, with their own stigma, cultural misrepresentations & (manipulative) industries?
Presently I am thinking the current approach to mental health, relying on Disorders is simply not good enough, that its benefits do not outweigh its negatives. There do appear to better ways to approach mapping & supporting features associated with Disorders.
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Something that has been bothering over the last two days. Is how some "PDA as an ASD" supporters seem to be confusing anxiety based RRBI's with autism's social communication issues.
Routed to DSM-5 autism criteria, Category A, social communication issues.
A—Deficits in social communication and interaction
A1—Deficits in social-emotional reciprocity
A2—Deficits in nonverbal communication
A3—Deficits in relationships
(Evers et al 2021).
I am critical of:
Much of its research.
How it is often theorised.
How it is being propagated.
Lack of ethical debate on it.
Generally, situation with PDA is bad. How bad, needs being investigated!
@NDx5fam I think PDA can be validly viewed as:
Rebranded autism.
A pseudo-syndrome made of features from accepted cosntructs.
A common disorder.
I think it is obvious nonsense that PDA is not autism, & it never should have been viewed as such.
@NDx5fam The situation with PDA, is appears akin to ABA, we know its practice & research are extremely shoddy, but we did not know how bad its research ethics necessarily were until research like this: frontiersin.org/articles/10.33…
While I am sympathetic & support the notion of boycotting #StopSpectrum10K, reading it raises more questions than answers for me. So Aucademy is meant to be involved with this.
The statement acknowledges issues dividing autism & makes points I agree with on the topic.
Yet Aucademy platforms PDA is an ASD supporters, i.e., persons which view PDA as a subgroup/ subtype.
"Which option leads me to act like the kind of person I want to be?"
Embraces good practice inclusive scientific-method based: theory, research, & practice. Advocating for all autistic persons are adequately supported.
Social model neurodiversity supporter.
Which in relation to PDA, is either it is a separate Disorder/ "diagnostic entity" from autism. Or, PDA's features are attributed to accepted constructs, like anxiety, ADHD etc, that informs support packages.
The principles about advocating for autistic persons support needs being adequately recognised, are also applicable to non-autistic persons with various ways of being/ "disorders"/ "conditions".
@noellevivante Potentially disregarding a minority groups wishes is something I have been reflecting upon recently due to my own research & how some autistic persons strongly view they have extra rights because they identify with PDA.
@noellevivante First point, just because some persons think PDA is an ASD, & strongly identify with it, does not automatically grant them extra rights. One only has to look at perspective taken in recent systematic review, BPS & NICE to see that.
@noellevivante Some would argue that PDA gives them extra rights under "biological citizenship", & it is from birth. There is good case PDA does not have to be developmental in nature, & is probably caused by trauma/ aversive events.
I will see what #PDASpace response to the email is before deciding if it needs to be added as another example of "PDA is an ASD" community not changing its position, i.e., being dogmatic.
Anyone want to take odds @PDASociety will be adding another example of "PDA is an ASD" supporters being dogmatic with its imminent monthly newsletter?