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3 Sep, 10 tweets, 4 min read
While I am sympathetic & support the notion of boycotting #StopSpectrum10K, reading it raises more questions than answers for me. So Aucademy is meant to be involved with this.
The statement acknowledges issues dividing autism & makes points I agree with on the topic.

Yet Aucademy platforms PDA is an ASD supporters, i.e., persons which view PDA as a subgroup/ subtype.
From the main document.
From the plain language summaries document.
Non plain language summary in the main document.
Interesting that the parts about subtypes does not mention that subtypes were partly removed from the DSM-5 to reduce stigma for all autistic persons. This has been noted independently by @drstevenkapp & @HappeLab
Which seems like a pertinent point to include.
Perhaps it should consulted my work discussing issues subtyping autism for that part of the document?

Link to @HappeLab:
apacu.info/wp-content/upl…

& @drstevenkapp work:
link.springer.com/chapter/10.100…
Link to one of the places I discuss issues subdiving autism here:
researchgate.net/publication/33…
Link to article which is a behind a paywall (which is why I shared the author's version of it):
link.springer.com/article/10.100…
Link to @BoycottSpect10K and their two documents.
form.jotform.com/aucademy/boyco…

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More from @Richard_Autism

Richard Woods Profile picture
2 Sep
"Which option leads me to act like the kind of person I want to be?"
Embraces good practice inclusive scientific-method based: theory, research, & practice. Advocating for all autistic persons are adequately supported.
Social model neurodiversity supporter.
Which in relation to PDA, is either it is a separate Disorder/ "diagnostic entity" from autism. Or, PDA's features are attributed to accepted constructs, like anxiety, ADHD etc, that informs support packages.
The principles about advocating for autistic persons support needs being adequately recognised, are also applicable to non-autistic persons with various ways of being/ "disorders"/ "conditions".
Read 4 tweets
Richard Woods Profile picture
1 Sep
@noellevivante Potentially disregarding a minority groups wishes is something I have been reflecting upon recently due to my own research & how some autistic persons strongly view they have extra rights because they identify with PDA.
@noellevivante First point, just because some persons think PDA is an ASD, & strongly identify with it, does not automatically grant them extra rights. One only has to look at perspective taken in recent systematic review, BPS & NICE to see that.
@noellevivante Some would argue that PDA gives them extra rights under "biological citizenship", & it is from birth. There is good case PDA does not have to be developmental in nature, & is probably caused by trauma/ aversive events.
Read 37 tweets
Richard Woods Profile picture
29 Aug
Should not need email #PDASpace with details of @BPSOfficial @NICEComms & recent PDA systematic review positions, suggesting they may wish to stop saying PDA is an ASD. Why would they currently view PDA as an ASD? @PDASociety @Autism
thepdaspace.com/pda-101 Image
I will see what #PDASpace response to the email is before deciding if it needs to be added as another example of "PDA is an ASD" community not changing its position, i.e., being dogmatic.
Anyone want to take odds @PDASociety will be adding another example of "PDA is an ASD" supporters being dogmatic with its imminent monthly newsletter?
Read 9 tweets
Richard Woods Profile picture
29 Aug
I sure hope the "PDA is an ASD" community is avoiding Spectrum10K like it avoids critical opinion, i.e., avoiding the demand to take part & provide genetic data to try & find subgroups.
The reason for this should be obvious, if they are looking to try fix, or erase autistic persons for not being "able" or productive in society. Any belonging to a group with "Pathological/ Extreme Demand Avoidance is highly likely to be near top of that list.
This makes sense when one considers that PDA as a construct is fundamentally based on non-compliance to non-autistic social norms, with often has extreme, socially outrageous, "challenging behaviour" to others requests.
Read 11 tweets
Richard Woods Profile picture
29 Aug
@autismcrisis My thoughts about this PDA systematic review.

I note that the systematic review is going quite broad in terms of searches and search terms. I suspect some would challenge the search terms for not referring directly to PDA, as in they are not names for it.
@autismcrisis The results are going to be biased by the campaigning to have PDA recognised as an ASD, both in terms of the research conducted, broader stakeholder opinions.
@autismcrisis Then there will have issues that demand-avoidance is a generic process, that its features are seen commonly in the human population. Not all of the features in various PDA behaviour profiles cluster with demand-avoidance features.
Read 17 tweets
Richard Woods Profile picture
27 Aug
What is not in the DSM-5 autism criteria.

Simply put. Why the **** are the likes of @PDASociety @Autism making the stupid decision to view PDA as an anxiety based disorder within the autism spectrum?
I know the logic & reasons why people often view to be an anxiety-based disorder within the autism spectrum. If we can critique Spectrum10k for autism not being an anxiety/ panic disorder. Same point is equally applicable to PDA!
I have had enough of the nonsense around PDA, the seemingly systemic poor quality, research, theory & practice associated with PDA is an ASD. The lack disclosure of conflict interests. The lack of transparency of the PDA Development Group.
Read 97 tweets

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